rymac

I only take it when I need it which is not very often. I noticed today that I got pretty bad headache after I took it. I think I got one the last time I took it a week ago.

I think the metoprolol is giving me headaches. I use to take the brand name Toprol XL and I don't remember having this problem. How long do these types of drugs keep?

thanks

Deep breathing never seems to have any effect on me when I am feeling anxious. I do take small doses of beta blocker and sometimes that helps. If I take too much I just get really tired. I will have to look into the valerian and skullcap.

Thanks for the input and support. There is not much I can do about the stress. My life is in a transition phase between school and work. The stress is only going to increase from this point on. I have no family around and maybe one friend for support. I do have some gastric problems but nothing that has giving me a definitive diagnosis. I am under weight and have a limited diet. I did some online research on nervous stomach and ginger and pepppermint was recommended. The ginger didn't do anything and I found some mints with real peppermint oil. They may have helped a little. I am going to try some water with baking soda. That has helped before for other stomach problems but I have never tried it for this. I will let you know if I find a natural remedy because the only way the medication works is if I take enough to make me sleepy.

I have a lot of stress and anxiety in my life at the moment. I don't know the exact triggers but I get a nervous feeling or what you might call "butterflies" in my stomach. Besides medication I am looking for something else that might help. I have done all kinds of deep breathing and even a little yoga and it is not working. I am wondering if there is some kind of food that might help. Looking for some suggestions or support.

Thank you to everyone for the information on Dr Kinsella. I don't know if I really have a reason to go see a specialist other than being worried about my low weight. I don't think there is much i can do about it.

I did find my records from Mayo Clinic and Dr Fealey recommended I take 10-15 grams of salt a day. I thought that was kind of high but he also recommended 2 liters of fluid a day. '

thanks again,

bluesman

I have been in the St. Louis area for a while but have not had much luck finding a doctor. I went to one regular doctor and he tried to discredit my entire diagnosis. I had my medical records from the Mayo Clinic and Birmingham from Dr. Watkins

My weight has also dropped down to the lowest it has ever been. I don't know why because I don't feel that bad for someone with dysautonomia. My weight is so low it scares me. I had not weighed myself in a long time. I have a limited diet but I do eat. Does anybody know how we figure out how much salt we can have per day. I am looking back in my medical records and can't find it. Thank you to anyone who can help me.

I agree with everybody else about Dr. Fealy. He did listen and he spent a lot of time with me. I wish I could see him again but my insurance will not pay for anything out of state. Good luck to you and I hope everything goes well.

I hope you find some help. I know brain surgery sounds scary but I am sure they have come a long way.

Best wishes to you.

Thanks for the kind words and support. I am kind of a slow test taker because I am afraid I will zone out and miss some small detail. I had only a homemade salt tab and water for lunch Wednesday at school. I felt much better in the afternoon class.

I did have some strange tingling in my chest and sometimes I feel it on my head.

I was stuck in class just waiting to go home so I could warm up. I was taking deep breathes to try and calm myself. My stomach was hurting kind of like gas pains. Studying and being alone all the time it is easy to loose a sense of reality. Then I actually did loose my sense of reality. Back in the my world today and busy studying again. Thank you everyone.

Thankks for the reply. I have never had an EEG. My hands were cold

I moved away to go back to school months ago. Today I was sitting in class. My stomach was giving me trouble, I was cold (even though I had on several layers of clothes), and I was feeling totally disconnected from reality. I almost felt like I had a slight buzz. I am many miles from family and friends so that seemed to add to the strange feeling. I know people on DINET have experienced the same thing. It left me lonely and uncertain. It was almost like a dream because I was surrounded by people I have only known for a few months. I needed to express my feelings somewhere. Thanks for reading.

bluesman

Elfie

If your mom is your closest ally tell her how you feel about moving home. Tell her what you want and need to be comfortable there. Then let her know how much it would mean to you to have her support.

Nothing wrong in asking for help when you really need it.

Welcome to the forum. I hope you find some help and support here.

I've been sitting here reading everyone's comment's and Melissa's situation. As a guy dealing with this illness here are some of my thoughts. First I'm encouraged to read there are so many kind, caring, and giving women out there. I have not been in a relationship for a very long time and I'm hopeful that I could still possibly meet someone worth while. I just need to keep looking. As far as dealing with a chronic illness I think you have to know what you want and need to be happy. If you catch yourself feeling awkward because of your illness you need to find out what is the best way for you to deal with it. No one else knows the answer to that but you. Sometimes that just takes time to figure out. I've been dealing with my illness for a while and I feel like I'm getting more at ease at just being myself. Which can be hard if you are not feeling well and have anxiety issues. I have made friends with some very nice ladies on this site and they have been a great source of support. If you are reading this and you know who you are I thank you. Sometimes there is no better bond with people than those who are experiencing some of the same things. Maybe I should be grateful to get a wake up call about my health at an early age. I read somewhere "a relationship should enhance your life not make your life." I know it's easier to say than do. Those moments when you are at your loneliest it's always easy to think "I wish I had someone to share my life with." I think most of us have experienced this, but you push on and the feeling passes. I hope anyone who is lonely and dealing with this illness can at least find this forum.

I know I'm one of the only guys on this site and I don't post much because I'm busy with school.

Take care

bluesman

Good luck to you. I hope things turn around for you. There are a lot of really good people here. I don't post much because I'm busy with school, but this forum has been a great source of support for me.

Take Care

Nancy,

You should grieve for the life you thought you would have but remember there are no guarantees in life even if you are healthy. You are not defined by your career. Your friends are your friends regardless of what job they have. If someone else defines you by your career they are not your friend. My life has not turned out as I expected it would. I'm trying to change my life at age 38 and it has not been easy. I hope you find happiness in something even if it's not acting. Learn to take care of yourself and ask for help when you need it.

Take care

Please do not give up. Hang in there. Do you have family or friends who can give you support? PM me if you need to.

Good luck to you! I can relate to dealing with clutter and all the stuff you don't use. I got rid of a lot of stuff when I moved. Sometimes I wanted to toss everything. Moving and storing stuff you don't use on a regular basis is a pain. Especially when you don't have the energy to use it or take care of it.

Here is hoping you can lead the simple life.

bluesman

dizzyde

Your topic title caught my attention and I can relate. I can still drive and I'm going back to school to learn a new job that I can do. I'm moving two hours away from family and friends and will be own my own. "Yes" it is a little scary. I've been on my own for a while. I think it takes lots of planning ahead and being prepared. It's a full time job to make sure you have food (I'm on a limited diet), car is running ( check the tires, oil and fuel), find a doctor, pay bills and more. You have a very limited amount of energy and you have to decide what things are really worth doing. My parents are getting older and friends are getting busier with their own lives so I wonder what the future holds for people in our situation. That is scary.

I hope you find a plan that works for you. PM if want and keep us posted.

bluesman

For years I knew caffeine and sugar made me sick. They would give me headaches but I would not give them up completely until I learned about dysautonomia. I experienced episodes of tachycardia for years and never thought much of it until I was diagnosed with MVP. Fumes from chemicals also made me very sick.

I'm so sorry for you. I hope you have someone to lean on. Take care and try to be strong.

Thinking of you today. Hope all is well.