The Member Stories section of our site is a place where members can submit the stories of their experiences as a person living with dysautonomia. We also link to member stories that have appeared in our newsletter. Please note that Member Stories are not edited by DINET and the views and beliefs expressed in the articles are strictly the views of the member. Please note that the stories submitted are reviewed for content and should follow the guidelines of the site. We do our best to publish each story submitted, but publication is at DINET's discretion. If you would like to submit your story, please write to webmaster@dinet.org - include "member story" in the subject line.

Member Story: Meet Isabelle

March 13, 2022

Isabelle is a young, creative entrepreneur but that wasn’t always her plan. She excelled at tennis as a preteen and hoped to pursue it as a full-time career. This seemed possible until an episode of heat stroke during a tennis match caused her heart rate to be sustained around 180 beats per minute for several days thereafter. She knew something was wrong having been a relatively healthy young woman prior to the episode. However, the doctors in the emergency room she visited told her that her symptoms were “all in her head,” and they dismissed her heart rate as a byproduct of being an anxious, preteen girl.

Read the rest of Isabelle's story in the Feb 2019 edition of Dysautonomia News