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  • COVID-19 Vaccination Recommendation from DINET:  DINET encourages its members to receive vaccinations and boosters for COVID-19 unless specifically advised against it by your medical provider. 
    DINET is a proud partner of the Long COVID Alliance, a resource and helping hand for anyone living with Long-COVID syndrome.

Dysautonomia Awareness Month



Research 2022

DINET is proud to  be a sponsor of a research study with one of our Medical Advisors, Dr. Svsetlana BlitshteynDirector of Dysautonomia Clinic / Clinical Associate Professor of Neurology, University at Buffalo Jacobs School of Medicine  The purpose of the research is to study sexual dysfunction related to POTS.  

Dr. Blitshteyn's career has been at the forefront of research for dysautonomia and specifically POTS, including research related to pregnancy and POTS and most recently COVID and dysautonomia.  

This study invites women and men to participate.  You must be 21 years of age or older and sexually active.  The study will include people living with POTS as well as those who do not have POTS for purposes of comparison.  

To participate please take this survey. https://patientscount.org/sdp

We are very excited to be a part of this study and will share any findings as they are released. If you have any questions, please contact Ellen Driscoll, DINET Board of Directors at ellen.driscoll@dinet.org

Ways you can help the Dysautonomia community during Awareness month.

  • If you value the work that DINET does, including the original videos, research, education for patients and the medical community, please consider supporting DINET with a donation or by volunteering. Your generous donations go towards providing our web services, maintaining our patient forum, providing printed materials, producing original videos, newsletters and multiple special projects to benefit the dysautonomia community and to help educate medical communities about dysautonomia.   There is no amount too small to be helpful.  Please  donate now through the PayPal Giving Fund.  
  • You can also choose DINET - Dysautonomia Information Network as your designated charity on smile.amazon.com  Every purchase you make includes a donation to our organization and it doesn't cost you any additional money.  There are many other ways to donate.  Anything you do to support us is greatly appreciated. https://www.dinet.org/get-involved/donate/ 
  • Print or email information from our website or request printed materials from us to give to medical professionals in your area, for support groups, for educators - coaches, school nurses and other people who interact with your teenage child and to give to family and friends to help them better understand your struggle.  Organizing a presentation about dysautonomia/POTS?  Request materials for your group webmaster@dinet.org
  • Join or start a local support group or begin a private support group  online. 
  • Participate in or begin a fundraiser for an organization or project that supports the dysautonomia community.
Whatever you choose to do, please reach out and spread the word.  


For October Awareness, Banana Bag is offering 20% off on select packs of Banana Bag. 
Use code " DINET" at checkout. 


Banana Bag Oral Solution is an oral solution formulated to exceed the standards of the World Health Organization for maximum absorption of water decreasing the need for intravenous therapy. Combining high dose water soluble, full spectrum, B-complex Vitamins (including L-methylfolate & methylcobalamin) with Vitamin C. The Banana Bag Oral Solution helps replenish vital nutrients lost to chronic illnesses, such as POTS. All of these benefits packed into a convenient packet containing no artificial sweeteners, preservatives, dyes or flavors, non-GMO, Gluten Free and Vegan!  Learn more about their products at their website - www.bananabagdrink.com

Please consider supporting the companies that support the POTS community. - Thank you!



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