anna Posted March 16, 2008 Report Share Posted March 16, 2008 One of my children has been quite poorly over the last 2 months, gastric ulcers, weight loss, problems with frequent urination, it has played havoc with his BP and HR. Anyway he has to go into hospital for a water deprivation test as Dr's think he may have Diabetes Insipidus. Do any of you have this condition if so how do you sort out your fluid levels with this condition??Anna Quote Link to comment Share on other sites More sharing options...
DancingLight Posted March 17, 2008 Report Share Posted March 17, 2008 Anna,Several of us on the board have either symptoms of and or confirmed diagnosis of Diabetes Insipidus. We use DDAVP or Desmopressin (which is the anti-diuretic hormone people with DI don't produce).Do you know how to use the search function? I would suggest you do a search for Diabetes Insipidus on the forum and see if you find the information that you are looking for...and then come back with follow-up questions that you didn't find answers.I wasn't quite sure from your post what information you would find most helpful, but doing a search is a starting point.Hope this helps,Emily Quote Link to comment Share on other sites More sharing options...
anna Posted March 17, 2008 Author Report Share Posted March 17, 2008 Thanks Emily, I looked back on the old posts, very informative. I am not sure what info I want really, the whole thing is just a bit confusing, the Dr's do not know if my sons problems are ANS, EDS linked or something else! his plasma osmalarity was higher than expected as was his sodium, hence Dr's now thinking DI but yet to rule out a hereditory form of Diabetes! I will keep looking up stuff. My main worry at presant is that my sons BP and HR will be all over the place during the water depravation test, as he dehydrats so easily.Anna Quote Link to comment Share on other sites More sharing options...
goldicedance Posted March 17, 2008 Report Share Posted March 17, 2008 Anna,The water deprivation test is one, but not the only, tool to diagnose DI. I underwent that test (I was hospitalized and was quite ill during the test). The nephrologist diagnosed DI on the basis of that test.However, I was referred to an endocrinologist at Georgetown University. He did additional testing and said I didn't have it. DI is pretty rare.A number of POTS people do have frequent urination, particularly during the night, and use DDAVP. But, that seems to be part of the POTS complex.Lois Quote Link to comment Share on other sites More sharing options...
anna Posted March 17, 2008 Author Report Share Posted March 17, 2008 Hi Lois,I wandered if their were other test for DI, at the moment my sons blood plasma show signs of DI, hence the water deprivation test, but I would like to know what other test are done for this. My son has since being a baby had bladder issues but over the last few months he has been going to the toilet 4 to 5 times an hour after filling in a chart for 3 days it was noticed that he seems to be putting more out than he takes in! to add to this just got call from DR. to say they found protein in sample so sending it off to lab. Quote Link to comment Share on other sites More sharing options...
goldicedance Posted March 17, 2008 Report Share Posted March 17, 2008 Has he been losing weight? I was hospitalized for about 10 days. I constantly put out more than went in, lost some weight, but not enough to count for the imbalance. There are some 24-hour collection tests that are also done. Be sure he sees a doctor who is a DI expert.Lois Quote Link to comment Share on other sites More sharing options...
anna Posted March 17, 2008 Author Report Share Posted March 17, 2008 Hi Lois, he's lost around 14 lb's but he has had gastric ulcers as well so I think that has caused the weight lose. Quote Link to comment Share on other sites More sharing options...
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