sfrnklin Posted April 9, 2007 Report Share Posted April 9, 2007 Hi,I'm not really new here. I read daily and answer postings occassionally. I have POTS and am doing much better with hardly any flareups since my ablation in Oct '06. by Dr. G in Ohio. BUT, I was recently told at my yearly eye appointment that I have a pale optic nerve, which is new from last year and that I should see my family physician so he can order a brain scan (MRI). I did and he said I should get one because it could mean I have Multiple Sclerosis, Lupus, or a brain tumor. Anyone ever heard of this or have this due to a pale optic nerve? And I really wonder if it is tied in with all this autonomic stuff!!!!!!!!Susan Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted April 9, 2007 Report Share Posted April 9, 2007 Hi Susan!Good to have you back...so sorry you are dealing with a new problem.I do know certain types of optic nerve problems are sometimes the hallmark of MS...but don't assume anything!Go for the MRI and build a good medical team you can speak with.The MRI AND a good neuro-opthomalogist will be helpful now.prayers and support to you dear..best regards,tearose Quote Link to comment Share on other sites More sharing options...
kmpower Posted April 9, 2007 Report Share Posted April 9, 2007 So sorry that you have to deal with another problem.Is is possible that reduced blood flow to the brain from your autonomic problems is the explanation for a pale optic nerve? I had an EEG which was normal, except for the lack of blood flow to the sides of the brain. This helped me to convince my other doctors to reduce the beta blocker which was causing some of my orthostatic symptoms.Best wishes.OLL Quote Link to comment Share on other sites More sharing options...
sfrnklin Posted April 9, 2007 Author Report Share Posted April 9, 2007 Thanks OLL and Tearose,I will keep your advice in mind. I go for my MRI this evening and some blood work for Lupus.Susan Quote Link to comment Share on other sites More sharing options...
flop Posted April 9, 2007 Report Share Posted April 9, 2007 Good luck with the MRI - if you haven't had one before be prepared for the scan to be quite noisy - lots of loud knocking noises round your head! I had earphones on so they could talk to me and they let me choose the radio channel to be played through the headphones to distract me a bit.I hope it all goes well and you get some useful results, let us know how you're doing,Flop Quote Link to comment Share on other sites More sharing options...
sfrnklin Posted April 9, 2007 Author Report Share Posted April 9, 2007 Thanks for the info FLOP, I will do so!Susan Quote Link to comment Share on other sites More sharing options...
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