Lukkychrm42 Posted July 3, 2006 Report Share Posted July 3, 2006 Hey there!I've got peripheral neuropathy in my bowels, apparently, AKA "IBS diarrhea type" from the dysaut/EDS, with nerve damage. The doctor put me on Lotronex, which is designed for people whose diarrhea is caused by over-motility, women specifically, though I don't know why. Anyway, I just wanted to say that it's working remarkably well, and if you've tried other drugs to no avail, this might be one to consider. But JSYK, your doctor has to be part of its prescription program. Anyway- just wanted to put that bit of info out into the abyss! Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted July 3, 2006 Report Share Posted July 3, 2006 Thanks for the info! What have you tried before? How long has this been working well? Any side effects? I've been trying to manage my abdominal cramps and diarrhea for years with fiber. It works fairly well, but i always have attacks every month or so. Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted July 3, 2006 Author Report Share Posted July 3, 2006 As a vegan, I have had quite a high-fiber diet for several years to no avail, and have also tried bouts of eating much less or moderate amounts in the hopes that my diet had too much. I've tried OTC pills such as pepto bismol (I can't tell you how many times I ran to the campus pharmacy between classes to pick up a new bottle in desperation) and kaopectate, and dairy-free digestion enzymes and acidophilus, none of which did much. I've been on it for 2 weeks now, and I feel practically normal, digestion-wise, which is amazing! I haven't noticed any symptoms outside of my normal range of dysaut. symptoms - in other words, I'm still nauseated and having stomach pain sometimes, but no more than before. Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted July 5, 2006 Report Share Posted July 5, 2006 That's so great that it's helped you like that! Hope your success continues! I empathize with the trips to the campus pharmacy-- my trips were for Kaopectate Quote Link to comment Share on other sites More sharing options...
goldicedance Posted July 5, 2006 Report Share Posted July 5, 2006 Megan, I hope your new regimen works well. Had you tried tetracycline? Did you have a breath test to see whether you had unfavorable bacteria in your intestines? I have been dealing with nasty diahhrea since fall 2004. Tetracycline seems to help for a few months.Lois Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted July 5, 2006 Author Report Share Posted July 5, 2006 Hi,I've had a ton of blood tests, stool cultures, and a colonoscopy and upper endoscopy, and there was no note of bacteria- overgrowths or those that didn't belong. Tet might help in some of those cases, but my problem seems to stem from an overly motile GI tract. Quote Link to comment Share on other sites More sharing options...
goldicedance Posted July 5, 2006 Report Share Posted July 5, 2006 The test I had is fairly new. It involves drinking something and then exhaling into a plastic bag every 20 minutes for a few hours. I've had loads of tests, endoscopies, etc. My GI doc says sometimes he puts people on a course of tetracyline every so many months and it does the trick. It works for a while for me. However, I always know where the restroom is and I hate to be far from it.What other meds did you try before you resorted to this new medication? Quote Link to comment Share on other sites More sharing options...
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