Sunfish Posted May 8, 2006 Report Share Posted May 8, 2006 Hello!The dates, times & locations have been finalized for two upcoming meetings in the Cleveland/ NE Ohio area for those with Dysautonomia. Family members & friends are also welcome. This is not an official event of DINET but something that several members have organized with sights toward possibly establishing a more ongoing support group in the area. Both initial meetings will be informal gatherings to meet others with a bit of discussion toward what interest there might be for meetings in the future. Some may choose to go out for an early dinner after the meeting at a nearby eatery.The meetings are as follows:Eastside Meeting Date: Sunday, May 21st Time: 2-4pm Location: Hillcrest Hospital, 6780 Mayfield Road, Mayfield Heights, OH 44124 (off I-271 at the Mayfield/Gates Mills exit) Directions: From Mayfield Rd. go into the Emergency Room DRIVEWAY, and go to the immediate left to park. If someone prefers to use the parking garage, they may, it's also free. She said there is a walkway from the parking lot to a side entrance door, that's were we go in. There will be a glass elevator when we walk in--take the elevator to the basement. The auditoriums will be right there, ours will be in Auditorium 'A'.Westside Meeting Date: Saturday, June 24th Time: 2-4pm Location: Parma Heights Baptist Church, 8971 West Ridgewood, Parma Heights, OH 44130 (just west of Parmatown mall, across the street from Walmart)Both locations are entirely accessible, air-conditioned and have free parking. You are welcome to attend either or both meetings. It would be great if those who plan on coming could respond so that we have an idea of how many to expect, but of course all are welcome regardless. Additionally, if you are interested in meetings in the future but are unable to attend at this time, it would helpful if you could indicate as such for future planning. melissa Quote Link to comment Share on other sites More sharing options...
PattiL Posted May 9, 2006 Report Share Posted May 9, 2006 Hi Melissa,Of course, Chrissy and I will definitely be attending the Hillcrest meeting and we will also try to be at the Parma one.If anyone needs a ride, please PM me. I live east of Mentor and could pick up anyone on the way, or nearby.Patti Quote Link to comment Share on other sites More sharing options...
cnm1 Posted May 11, 2006 Report Share Posted May 11, 2006 Rachel and I will be at the Hillcrest meeting.Louise Quote Link to comment Share on other sites More sharing options...
bjgioffre@bex.net Posted May 15, 2006 Report Share Posted May 15, 2006 Hi MelissaI am writing for my cousin Pat (she's fifty-something) and lives in Mentor, Ohio a suburb of Cleveland.She was diagnosed with POTS September 2004. She had neck surgery (partial corpectomy) April 2002, back surgery (lamenectomy) July 2003 and an additional neck surgery on March 1, 2006. I told Pat about the meeting but she wasn't feeling very well and is unsure if she will be able to attend. She is registered for the forum and does have an email address---butterfly44060@aol.com---but does not use her computer often. She does have unlimited long distance calling---440-974-2602 and would enjoy talking to members in the area. I want to get her into the loop for information and moral support. Thanks, BJ Quote Link to comment Share on other sites More sharing options...
corina Posted May 15, 2006 Report Share Posted May 15, 2006 ooohhhhhhhhhhhhhh man, i am sooooooo jealous. i can't help it (i'm really not a jealous type) but i sooooo wish i could join you all.have fun you guys, i'll be thinking of you!!!!!corina Quote Link to comment Share on other sites More sharing options...
Kimberley Posted May 16, 2006 Report Share Posted May 16, 2006 Hello everyone, I will be attending the Parma Meeting. If there is anything I can do to help please let me know.Kimberley Quote Link to comment Share on other sites More sharing options...
Sunfish Posted May 16, 2006 Author Report Share Posted May 16, 2006 BJ, it would be great if your cousin could make it to a meeting but i definitely understand that it's not always possible. i'm keeping my fingers crossed myself that i'll be able to get there!pat may want to sign up for DINET's meet others program. essentially it is just an exchange of contact info between those in the same area so that people can connect if/when they would like via email, phone, or otherwise. the link to sign up is http://www.dinet.org/meet_others.htmcorina,i wish you could join us too! if only we had magic to send us from one place to another in a second (do you know of harry potter?...that's who we need). looking forward to seeing all of you that are planning on coming sunday and/or in june... melissa Quote Link to comment Share on other sites More sharing options...
Guest Mary from OH Posted May 21, 2006 Report Share Posted May 21, 2006 Wah!! I haven't been able to be on the site for a LONG time. My migraines have been giving me fits with this lovely OH weather! (not to mention the POTS flare ups) I can't make it to the Cleveland meetings!! And I soooooo wanted to go!! My daughter has a Feis (an Irish Dance competition) that weekend in Dayton! And the one for today I'm just reading about!! Wah!!!! Have a great time and maybe I'll be able to catch you all on the next one!! Quote Link to comment Share on other sites More sharing options...
Sunfish Posted May 22, 2006 Author Report Share Posted May 22, 2006 mary - sorry that you've been having such a rough time. we'll let you know when we schedule something again...i'll even try to remember to email you in case you're not on the site. (though honestly i'm not certain how long i'll be in the cleveland area but who knows...)i hope your daughter's competition goes well & that she's doing well these days herself. i lived the first 7 years or so of my life in a suberb outside of dayton & have many fond dayton memories. and i have some irish blood in me (25%) and have always enjoyed the dancing as well. a high school friend of mine's older sister does it professionally.it was great to meet those who were able to make it. i only got there by way of my mom driving in to get me there. melissa Quote Link to comment Share on other sites More sharing options...
Babettegall Posted May 22, 2006 Report Share Posted May 22, 2006 Melissa,Please count me in for the Parma meeting! I've been so "out of pocket" lately, I have a bunch to catch up on, and missed the opportunity to attend the 5/21 meeting.Anyway, I would really, really like to meet up with those going to Parma in June. Will we have future reminders to help make sure we don't "forget" about this upcoming opportunity to meet?Thanks for pulling this together! Quote Link to comment Share on other sites More sharing options...
Sunfish Posted May 22, 2006 Author Report Share Posted May 22, 2006 hi babs -i'll post once again before the june meeting but if you join the meet others list that group gets emails about it as well. melissa Quote Link to comment Share on other sites More sharing options...
CDT Posted May 26, 2006 Report Share Posted May 26, 2006 Hi MellisaI would love to attend Parma's meeting. Lot's to talk about.Thanks So much!Chell Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted May 29, 2006 Report Share Posted May 29, 2006 JAQUIROUIN...thought you may want to see this...maybe this meeting will work out for you? Quote Link to comment Share on other sites More sharing options...
Sunfish Posted May 29, 2006 Author Report Share Posted May 29, 2006 chell - glad to hear that you're planning on coming.... melissap.s. tea -i could be mistaken but i think jacquirin is only going to be on a tour in NY & Canada. if that's the case cleveland wouldn't be doable..... Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted May 29, 2006 Report Share Posted May 29, 2006 thanks melissa!One never knows...they may just like visiting here so much that it is worth the trip to Ohio. Heck, if I had the energy and the funds...I'd go to Ohio. tearose Quote Link to comment Share on other sites More sharing options...
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