Can MD diagnose Autoimmune POTS

[MNsue]

I have lots of autoimmune issues, and have suffered with these symptoms for 15 years. I was only recently diagnosed with POTS.

Is the treatment for POTS different for patients with a strong history of autoimmune disease?

I tend to have site specific autoimmune disease. Has anyone ever studied this and POTS?

Thanks for your input.

Rhonda

[Poohbear]

I don't think the treatment for the symptoms of the POTS would change however, if they can treat the underlying autoimmune disorder you have you may become much more functional and less symptomatic.

Have you done any research into IVIG therapy?

You may want to look at this old link

http://dinet.ipbhost.com/index.php?showtopic=3735&hl=plasma

[MNsue]

I don't think the treatment for the symptoms of the POTS would change however, if they can treat the underlying autoimmune disorder you have you may become much more functional and less symptomatic.

Have you done any research into IVIG therapy?

You may want to look at this old link

http://dinet.ipbhost.com/index.php?showtopic=3735&hl=plasma

Thank you so much for the link. I will bring it along with me to my next Dr. apt.

Rhonda

[futurehope]

Rhonda,

I know that the neurologist I saw at Hopkins had said that if there was autimmune stuff going on, especially to ganglionic receptors as mentioned in the last post, he would suggest getting IVIG (an IV containing immune globulin).

Maybe you could search for IVIG?

Anyhow, if you do have a disorder causing POTS, it would certainly help to treat the disorder.

What kind of physician have you seen? Was it a rheumatologist?

[Be Still]

Sorry to bring it up . . .

But have you looked at the postings for Lyme disease?

[MNsue]

Rhonda,

I know that the neurologist I saw at Hopkins had said that if there was autimmune stuff going on, especially to ganglionic receptors as mentioned in the last post, he would suggest getting IVIG (an IV containing immune globulin).

Maybe you could search for IVIG?

Anyhow, if you do have a disorder causing POTS, it would certainly help to treat the disorder.

What kind of physician have you seen? Was it a rheumatologist?

I did see a Rheumatologist, but I don't meet any criteria for a systemic autoimmune disease, only site specific, hence they don't treat patients like myself. I have an appointment with an immunoligist in May. Maybe that will lead to some more answers.

Thanks for the IVIG info. I will bring it along with me when I see the specialist at the U of M on Thursday.

Rhonda