Be Still Posted March 13, 2006 Report Share Posted March 13, 2006 I have POTS.It took 47 years to find out, as I was likely born with it.I have many sx of hyperadrenergic and will have a catecholamines study to confirm; my 1995 TTT is unclear on this.Dr Grubb?s wonderful manner cannot be overstated and it is very reassuring to have the explanations he gave of both my condition and why medical science was clueless most of my life. I also think very highly of Bev, his NP, who overflows with empathy and helpfulness. The day was long and wearying, but well worth it. I liked Dr. G?s laid back style, instant understanding of how my constellation of sx might be helped and his evident, deep concern. He often refers to his own health struggles in a way that makes one feel he can truly relate, and gives him an unfair advantage when I want to protest a recommendation!So far, I was prescribed labetalol (BB), Cerefolin (brain fog is a huge issue) and a sleep aid (waiting for pre-approval.) I?ve struggled with some sx from the new meds, but nothing unmanageable. I have been urged to recondition, swimming was suggested. Dr. G also recommended counseling since a chronic illness is hard on oneself and also taxes the family.*Sigh.*Apparently, I can stop kicking myself for not functioning better, and I can finally, finally, finally, take off my medical detective hat.I guess I?m just visiting this planet. On Planet POTS, where I was born, the gravity was different. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 13, 2006 Report Share Posted March 13, 2006 Welcome back!born with it eh? Don't you wish your parents could have "given" you a present of a different sort? Well, I am glad you now have a dx and that you are already treating it.It is also wonderful that you have found yourself a doctor that you have confidence and help from! Finding and developing a medical management team is half the battle!Thank you for sharing your good news.tearose Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted March 13, 2006 Report Share Posted March 13, 2006 Thats wonderful!! It is funny when I was a kid I often thought "i was not cut out for this world"...Guess I was right!!! I was cut out for a planet with less mass....lol Quote Link to comment Share on other sites More sharing options...
taylortotmom Posted March 13, 2006 Report Share Posted March 13, 2006 Congratulations on receiving a diagnosis but certainly not "getting" the diagnosis. I think most of us can relate to the frustration of chasing explanations for years without knowing what is wrong. Dr. Grubb sounds wonderful and I am glad you have been seen and diagnosed. Here's to even more understanding and sx management in your future!Carmen Quote Link to comment Share on other sites More sharing options...
Be Still Posted March 14, 2006 Author Report Share Posted March 14, 2006 Ladies,Thank you for your responses, I appreciate that you care. I'm grateful for this site and your compassion and concern. Thanks for being there.It has been a long road, I'm glad I finally have one answer, and some empathetic buddies to walk with down the road.So, here's a toast to you, my walking mates:A toast to your coffin. May it be made of 100 year old oak. And may we plant the tree together, tomorrow.Slainte! Quote Link to comment Share on other sites More sharing options...
Sunfish Posted March 14, 2006 Report Share Posted March 14, 2006 glad that your visit was a good one and hope that the new treatment plan brings relief.... melissa Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.