OCsunshine Posted November 8, 2005 Report Share Posted November 8, 2005 I saw a new neurologist today. He didn't have my medical history or anything, so at first we just discussed my face pain (the possible trigeminal neuralgia). He did a long exam on me ("touch your nose" and "watch my finger" and "walk this way" etc etc). While he finished up he said, "I don't know if you realize this yet, but your autonomic nervous system is severely off-set." Obviously I know that, but I baited him and asked him why he thought so. He said that first of all, my PUPILS are HUGE. I do know that, too (I get comments by store clerks, people at bus stops... you name it... I am told often that my pupils are huge. Weird, huh?). So the neurologist said that's the same part of the brain that controls the heart rate, blood pressure, and skin temperature... so I must be having some strange struggles with those things. Well shoot- those are my top 3 problems right there. I was just rather impressed that he told ME all of this about myself just from examining me before I even told HIM! So anyway... I was glad to have another doc that was very knowledgable about NMH/dysautonomia, and he was very kind and personable. Whew! When I told him my 'story' and about Hopkins and Dr Rowe there and everything, this new neurologist explained the nervous system and the problems I have the best he could and also said "I know that Dr Rowe knows more about this than I do, but I am just telling you what I know." You have to admire a doctor that will go ahead and say he doesn't actually 'know it all.' :-P So it was an interesting visit. We couldn't really get to the bottom of my face pain, it is indeed a mystery. The wisdom teeth surgery is a real question mark though, since that was fairly recent. The pain isn't so severe now, so I'm going to leave it alone and not take any more meds to try to heal it. I did get another Rx in case it flares up and I want to try something else, though. Just thought I would update you.... Quote Link to comment Share on other sites More sharing options...
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