ChiariMSwithPOTS Posted September 4, 2005 Report Posted September 4, 2005 Hi POTS People,I'm looking for some friends on the board who have Chiari. Would love to compare stories, compare, etc. Reply or send me a private message. Thanks.KLSBoston, MA Quote
ChiariMSwithPOTS Posted September 6, 2005 Author Report Posted September 6, 2005 Come on, I know you're out there. Don't be shy, Chiarians. Quote
OCsunshine Posted September 6, 2005 Report Posted September 6, 2005 I don't quite have the chiari malformation, but am borderline... so they call it "cervical stenosis" for me.I have a friend (met on a list-serv, she lives in PA) who has the chiari malformation, though. She had brain surgery to correct it (Dr Weingert at Hopkins did her surgery). So I am familiar with her experiences, and have had similar problems b/c of the narrowing of my spine in that area. Quote
DancingLight Posted September 6, 2005 Report Posted September 6, 2005 I am the same as Rachel...cervical stenosis...not Chiari...Emily Quote
ChiariMSwithPOTS Posted September 12, 2005 Author Report Posted September 12, 2005 Rachel and Emily: Thank you for the replies. I have some cervical stenosis as well. Yeah the symptoms are smiliar. Steph: I hear yeh. Lots of rare disorders here too.Julia: Nnnn???I saw a post earlier, but now it's deleted, about someone who saw, Dr. Bolognese. That's who did my surgery.KLS(who needs to work on making her signature. hehe)Boston, MA Quote
Poohbear Posted September 12, 2005 Report Posted September 12, 2005 Haven't been diagnosed for sure although I am awaiting results.You can do a search for Dr. Bolognese and you will find some posts.Welcome to the site !!!! Quote
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