mehaller Posted December 16, 2022 Report Share Posted December 16, 2022 I have struggled to make contact with my neuro at VA Portland. Last convo was mid April when he said staff would schedule another call. Didn't happen. I made three calls - he bagged all of them. I am now in touch with the Dep Chief of Staff office. Not holding my breath. The system seems to be broken. In other news, I made some bulk changes to routine. 1). Reduced midodrine to two 5 mg per day due to headaches. And, reduced water intake to about 50 oz per day - too many night day and night visits. 2). Raised the head of my bed by 7". 3). Started taking B complex, and L - Arginine and L - Citruline combo First thing is that I am getting seven and occasionally eight hours of sleep. This has made a huge difference in my daily routines. I'm on my feet much longer. I have been able to horse my 1000lb ATV mower around on the hillside for two hours, much fewer post-prandial crashes, longer walks, and I don't have to find a bench at the grocery check-out counter. Headaches events reduced. Why start the Bs and L Arg and L Cit? Seems counter-intuitive taking a vessel "relaxer" and midodrine. Why not? Many things have been paradoxical. Besided, I don't appear to have a doctor to brow-beat me. Which of these things worked? Don't know, and at this point I don't care. Now, the but. Prior to my supplements and other actions, I'd begun to have what I can only surmise is some form of neuropathy in my right foot - constant scrunching of my toes, seemingly initiated at the pad below the secnd and third toe. This resolves when I sleep - so far. Some days I want get the drill out and ... Thoughts du jour. Quote Link to comment Share on other sites More sharing options...
Angel Posted December 16, 2022 Report Share Posted December 16, 2022 Following … as from one cardiologist I was prescribed metoprolol for the high heart rate and midodrine for the vessels I assume , at this moment I’m scared to take any meds because of side effects or bad reactions .. but I’m desperate 😞 Quote Link to comment Share on other sites More sharing options...
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