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Does inflammation cause dysautonomia/POTS?


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I have CFS and POTS/orthostatic intolerance and get so much worse symptoms (dizziness, chest pressure, etc.) when dealing with colds, etc. or shortly after. Does anyone know if this is due to inflammation, autoantibodies or something similar? I don't think that I have MCAS but you never know. And does non-strenuous exercise make this worse (ie. walking on flat surfaces)?

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Yes inflammation can exacerbate POTS.  My specialist blames every flare up I have on some sort of inflammation.

I may not understand your 2nd question--but yes exercise can also worsen symptoms, at least temporarily.  Exercise can also help improve symptoms in long run.

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On 7/1/2022 at 6:55 AM, MomtoGiuliana said:

Yes inflammation can exacerbate POTS.  My specialist blames every flare up I have on some sort of inflammation.

I may not understand your 2nd question--but yes exercise can also worsen symptoms, at least temporarily.  Exercise can also help improve symptoms in long run.

Thank you! I guess pacing is important the way it is with chronic fatigue syndrome.

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Interesting - if not unfortunate - topic.  I have Ankylosing Spondylitis and "other" arthropathies. I used to take adalimumab (Humira) for the AS and it worked very nicely.  I went off of that drug about a year ago before I was on the dysautonimia hunt.  I suspended on the 1% chance that the drug itself was causing my lightheadedness.  Around the same time I went off of gluten.  The Ankylolsing Spondylitis pain rebound that I had anticipated didn't happen.  It would appear that gluten was likely a major contributor to my inflammation issues.  

Until I started midodrine.  I have had enough imaging that I know which of my vertebrae are ossifying etc.  So, my question is whether others have experienced significant inflammatory responses with midodrine?

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