Sarasw Posted June 24, 2022 Report Share Posted June 24, 2022 I have CFS and POTS/orthostatic intolerance and get so much worse symptoms (dizziness, chest pressure, etc.) when dealing with colds, etc. or shortly after. Does anyone know if this is due to inflammation, autoantibodies or something similar? I don't think that I have MCAS but you never know. And does non-strenuous exercise make this worse (ie. walking on flat surfaces)? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted July 1, 2022 Report Share Posted July 1, 2022 Yes inflammation can exacerbate POTS. My specialist blames every flare up I have on some sort of inflammation. I may not understand your 2nd question--but yes exercise can also worsen symptoms, at least temporarily. Exercise can also help improve symptoms in long run. Quote Link to comment Share on other sites More sharing options...
Sarasw Posted July 7, 2022 Author Report Share Posted July 7, 2022 On 7/1/2022 at 6:55 AM, MomtoGiuliana said: Yes inflammation can exacerbate POTS. My specialist blames every flare up I have on some sort of inflammation. I may not understand your 2nd question--but yes exercise can also worsen symptoms, at least temporarily. Exercise can also help improve symptoms in long run. Thank you! I guess pacing is important the way it is with chronic fatigue syndrome. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted July 8, 2022 Report Share Posted July 8, 2022 Yes, a gradual approach to exercise is best in most cases. There have been a lot of past discussions about this topic, eg https://www.dinet.org/forums/topic/32391-exercise-intolerance/ Quote Link to comment Share on other sites More sharing options...
mehaller Posted July 14, 2022 Report Share Posted July 14, 2022 Interesting - if not unfortunate - topic. I have Ankylosing Spondylitis and "other" arthropathies. I used to take adalimumab (Humira) for the AS and it worked very nicely. I went off of that drug about a year ago before I was on the dysautonimia hunt. I suspended on the 1% chance that the drug itself was causing my lightheadedness. Around the same time I went off of gluten. The Ankylolsing Spondylitis pain rebound that I had anticipated didn't happen. It would appear that gluten was likely a major contributor to my inflammation issues. Until I started midodrine. I have had enough imaging that I know which of my vertebrae are ossifying etc. So, my question is whether others have experienced significant inflammatory responses with midodrine? Quote Link to comment Share on other sites More sharing options...
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