HealingforLo Posted June 9, 2022 Report Share Posted June 9, 2022 Has anyone gone to Vanderbilt for treatment? Did Mayo give treatment plans? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted June 9, 2022 Report Share Posted June 9, 2022 Just in case you haven't seen it we maintain a list of physicians here https://www.dinet.org/physicians/ You can also do a search on the forum for key words such as these facilities to see past conversations. Many here have gone to Vanderbilt for testing and diagnoses. I think not so much for treatment. This can be the same for Mayo. Quote Link to comment Share on other sites More sharing options...
HealingforLo Posted October 13, 2022 Author Report Share Posted October 13, 2022 We are still very desperate. Who do we see to test possible underlying cause of POTS? Her symptoms have put her back into a cycle of Disordered Eating. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted October 13, 2022 Report Share Posted October 13, 2022 These past discussions may be helpful https://www.dinet.org/forums/topic/31661-any-other-great-dysautonomia-places-besides-vanderbilt-need-accurate-diagnosis-as-well/#comment-284578 https://www.dinet.org/forums/topic/28480-mayo-or-vanderbilt-which-would-be-best/#comment-262441 Quote Link to comment Share on other sites More sharing options...
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