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POTS and SCDS?


MeAgain...

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Hi. I'm new here. I am glad to find a forum where people dealing with debilitating conditions can share knowledge and experiences. I especially appreciate the fact that I don't have to join any major social media platform in order to participate. Thank you for that. 

I am a while out yet from a diagnosis, but my primary suspects POTS and all of the pieces fit. Even if it is not textbook POTS, it is something similar.

Aside from finding a competent doctor and getting an accurate diagnosis, my immediate concern is that I have been successfully managing symptoms of Superior Semicircular Canal Dehiscence (SCDS) for the past several years on a low sodium diet. Now I find that high sodium intake is a large component of symptom management for POTS. 

By chance is there anyone out there who is also dealing with SCDS?

Or more generally, has anyone found solutions for treating POTS while maintaining a low sodium diet?

I can't imagine having to choose between the two conditions when it comes to managing symptoms. I appreciate anyone sharing their experiences on this.

Thanks

Meg

 

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