No diagnosis--dysautonomia?

[Shinaywa]

I am recently diagnosed with Hypermobility spectrum disorder, Fibromyalgia and chronic fatigue syndrome. I went for an autonomic reflex testing and everyhting came back negative but I was fainting, passing out and tremors fatigue etc for two days while at Mayo Clinic and idk what to do  I’m trying to find out if I have dysautonomia which I highly suspect, but may I ask if anyone else experiences patterns in hr like below and if so what diagnosis you have?

[MomtoGiuliana]

Do you have a specialist who is evaluating your symptoms? 

When I had severe POTS I had high heart rate even resting, and probably at times it was in the 90s-low 100s at rest.  It would also tend to be higher after eating and also worse in the morning and better in the evening.  The hallmark of POTS though is a change of at least 30 bpm from sitting or lying down to standing.  My hr would go up to 160 just standing up.  Obviously you would need some sort of test of orthostatics to determine if this is happening.

There are of course other forms of dysautonomia and also there could be another cause for these symptoms.  Hopefully a specialist can figure this out for you.

 

[MikeO]

19 hours ago, MomtoGiuliana said:

Do you have a specialist who is evaluating your symptoms? 

When I had severe POTS I had high heart rate even resting, and probably at times it was in the 90s at rest.  It would also be higher after eating and also worse in the morning and better in the evening.  The hallmark of POTS though is a change of at least 30 bpm from sitting or lying down to standing.  My hr would go up to 160 just standing up.  Obviously you would need some sort of test of orthostatics to determine if this is happening.

There are of course other forms of dysautonomia and also there could be another cause for these symptoms.  Hopefully a specialist can figure this out for you.

 

Well i have lived the at rest 90's as well as the at rest 60's i have also seen the hallmark of POTS and my bp has jumped 30+ bpm while standing up . I have also seen is a drop in bp with no rise in heart rate while standing. Not sure what keeps being quoted as a high heart rate (is that non-beta blocked?). my cardiologists keep telling me the beta-blockers will keep my max hr in check. so far they are on que. 

[MomtoGiuliana]

22 hours ago, MikeO said:

 Not sure what keeps being quoted as a high heart rate (is that non-beta blocked?). my cardiologists keep telling me the beta-blockers will keep my max hr in check. so far they are on que. 

I was prescribed a low dose beta blocker that did knock my hr down.  The "high hr" I mentioned was pre-diagnosis.