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Hello guys. I am fairly new here -diagnosed last month and still trying to figure out stuff. I am wondering what symptoms make you guys use wheelchairs? I am using one so I can get out of the house. The intense pressure of standing up is what gets to me. The longer I stand, the more and more uncomfortable I get--neck pain, trouble breathing, trouble swallowing, chest pain (although beta blocker has helped that), chest pressure, I guess I feel that there is no blood above my heart--I cannot think, blurred vision with white spots like coming in from the sun. My heart rate runs 120-140 standing up. When I stand still it climbs too. Has gone in the upper 160s. That is what I can think of for the moment. Does this sound like what goes on with you guys?

Thank you, Jennifer in very hot TX

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