Trying Posted May 8, 2019 Report Share Posted May 8, 2019 Young adult daughter has been taking fludro .1mg for about 3 months, desmopressin .1mg, Midodrine .25x3, and BCP. She has never been lighthead, dizzy, or faint when upright. However, her feet become red/purple with splotches as she stands, worse when hot. She has no energy. Her total blood volume testing showed -10.6% (report said mild deficit); red blood cell volume was -17.3% (mild deficit); plasma volume was -6.9% (normal deficit). Recent home BP: HR BP Supine 69 106/68 1-min stand 89 124/85 4-min stand 90 117/80 8-min stand 106 94/78 In your experience, do you feel this could be POTS? Orthostatic hypotension? Normal? Your knowledge or experience with blood volume and/or HR and BP changes is much appreciated!! Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted May 8, 2019 Report Share Posted May 8, 2019 16 hours ago, Trying said: She is not lighthead, dizzy, or faint when upright I would celebrate that rather than focusing on the numbers. IMO the BP readings are not consistent with OH, they go up initially then come back down to near baseline, but there is narrowing of the pulse pressure to 16 after 8 mins which can reflect low stroke volume, and the HR rise of >30 in under 10 min is consistent with POTS. It may be that the medications she is on are improving things from what they would be unmedicated. Where did she go for the blood volume test? Has her specialist diagnosed a type of dysautonomia? B xxx Quote Link to comment Share on other sites More sharing options...
Trying Posted May 8, 2019 Author Report Share Posted May 8, 2019 Thank you @FileTrekker, she seems to have inconsistent readings at different times with different doctors. @bombshll, I am sorry, in my post I meant to say that now as well as in the past, our daughter has not been lightheaded or dizzy, (fainted only 2 times over 10 years ago). Same with hypotension, she does not feel lightheaded or dizzy or nauseous when she stands up; she feels her legs get heavy and her blood pools/feet turn red and she feels energy drain. She has not seen any specialist to diagnose dysautonomia/type. I just saw a youtube POTS patient who described leg heaviness, but her current doctor dismissed that symptom as being a POTS symptom. Quote Link to comment Share on other sites More sharing options...
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