jknh9 Posted January 4, 2019 Report Share Posted January 4, 2019 Hi everyone, I haven't been here in a while, but thought I would ask about people's experiences coming off of mestinon, especially if you've been on it long-term. I've been on it for several years, I was at 60 mg 3x a day, then was on 60 mg 2x a day for a couple of years, and have been on 30 mg 2x a day for the past 8-9 months. I've been having increasing muscle cramping and twitching over the past couple of years, especially in my right leg, and I'm wondering if the mestinon isn't contributing. I also lost a lot of weight, though, over the past few years, becoming clinically underweight, so there may be some muscle wasting, too. But I am interested in trying to go medication-free, and this is my last one. I'd love to hear others' experiences with stopping this drug. Did you do it cold turkey or taper? Quote Link to comment Share on other sites More sharing options...
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