bombsh3ll Posted September 16, 2018 Report Share Posted September 16, 2018 Having exhausted most of the traditional options I am currently looking into the possibility of pregabalin (Lyrica). The combination of dampening down overactive sympathetic tone, pain relief, insomnia treatment plus the possible bonus side effect of fluid retention sounds extremely appealing as a POTS drug. I also came across some positive research into its use in the context of dysautonomia due to Guillain-Barre syndrome in controlling adrenergic storms and labile BP. Has anyone with POTS/OI tried this drug and how did you find it? B x Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted September 17, 2018 Report Share Posted September 17, 2018 I have hypoPOTS. It didn't help my POTS at all and I gained weight so fast I would wear clothes, wash them, then put them on again, but they wouldn't fit. It was like they weren't ever my clothes. It was only a two week span. I gained 30 pounds in 3 months. It was shocking. The same thing happened to my aunt. It wasn't all fluid weight either. It took years and bad gastroparesis to lose the weight. Keep a careful watch on this drug. Kim Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted September 19, 2018 Author Report Share Posted September 19, 2018 On 9/17/2018 at 3:26 AM, KiminOrlando said: It didn't help my POTS at all and I gained weight so fast Thanks for the info, I'm sorry to hear it didn't work out for you Kim. I am possibly more hyperadrenergic but hopeful that it might be the ticket. I lost a lot of weight rapidly when I developed POTS & struggle to eat enough and keep my weight up, also lost a lot of muscle since becoming so sedentary but wouldn't want to blow up like a balloon without any benefit. I'll give it a go when I can get some hopefully in the next few weeks and report back either way, in case it is of interest to anyone else. B x Quote Link to comment Share on other sites More sharing options...
Potsie1990 Posted September 21, 2018 Report Share Posted September 21, 2018 Gave me horrific sleep paralysis. Like horrific. I will never touch the drug again. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted September 21, 2018 Author Report Share Posted September 21, 2018 1 hour ago, Potsie1990 said: Gave me horrific sleep paralysis. Like horrific. I will never touch the drug again. That's really scary! Did you take it before or after developing POTS? B x Quote Link to comment Share on other sites More sharing options...
Potsie1990 Posted September 21, 2018 Report Share Posted September 21, 2018 Before, and before I even knew what was wrong and was diagnosed, which terrifies me to take to take it after. But technically I could have had pots at that time as well. They just suspect it was mild at that time. Quote Link to comment Share on other sites More sharing options...
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