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Do these symptoms sound like POTS?


zmumu1

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Brief backstory:

Went to my GP with these symptoms:

frequent urination, gastrointestinal problems (constipation, diarrhea), temperature regulation problems, inability to sweat, brain fog, memory problems, dizziness upon standing, erectile dysfunction (I'm a man BTW), heart palpitations, fatigue, and insomnia. The cognitive problems seemingly get worse after eating.

I was referred to see a neurologist, but unfortunately it takes about 2 months to get in the door with a neurologist in my area so I'm still waiting.

I've performed what's called the active standing test several times at this point and below are the results

test 1:

supine

2 minutes bp 124/67 heart rate  59, 5 minutes bp 128/71 heart rate 59, 10 minutes bp 122/68 heart rate 63

standing

2 minutes bp 127/88 heart rate  96, 5 minutes bp 134/89 heart rate 99, 10 minutes bp 119/89 heart rate 120

test 2:

supine

2 minutes bp 117/63 heart rate  62, 5 minutes bp 109/62 heart rate 66, 10 minutes bp 105/64 heart rate 63

standing

2 minutes bp 115/79 heart rate  91, 5 minutes bp 131/92 heart rate 83, 10 minutes bp 130/91 heart rate 95

test 3:

supine

2 minutes bp 114/63 heart rate  60, 5 minutes bp 113/64 heart rate 61, 10 minutes bp 108/63 heart rate 63

standing

2 minutes bp 119/83 heart rate  90, 5 minutes bp 124/85 heart rate 99, 10 minutes bp 119/93 heart rate 100

 

Do the totality of my symptoms along with the active stand test data I've taken hint at POTS or some kind of autonomic disorder?

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Hi @zmumu1, although we cannot diagnose you, one of the characteristics of POTS is an increase in heart rate when going from lying down to standing. Looking at the first test that you did, it appears that you had a +33 - 57 increase in your heart rate, which is characteristic of POTS.

Autonomic specialists will typically prescribe a tilt table test so that they can accurately measure your vitals in a control lying to standing environment, but they also look at symptoms and patient history, ruling out other potentail causes before making a diagnosis.

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