kyrotherat Posted February 27, 2018 Report Share Posted February 27, 2018 Hello Everyone, my name is Michelle and I have Polyneuropathy with Autonomic Dysfunction. I am sad to say that I am not joining this support group for myself. My 9 year old has been having problems with Autonomic Dysfunction. He is especially having problems with chronic migraines. He has been really sick and despite Doctors orders the school will not work with me on getting my son half days. Worse yet, it doesn't matter how much pain he is in, he will not be allowed to come home unless he is vomiting or has a fever. NO TREATMENT works! He has them non stop. Guess who CPS is after, me. For educational neglect. I have doctors backing me but the school is not. Talk about suffering. Does anyone have experience with this? I am ready to pull him out of school. Quote Link to comment Share on other sites More sharing options...
Juju Posted February 27, 2018 Report Share Posted February 27, 2018 I have experience with chronic migranes, and status migraines. So much so i have been hospitalized in the past. The hospitals migraine “cocktail” wouldn’t always help. Some home remedies Ive tried have helped like: drinking caffeine, magnesium pills, hand massaging, and sleeping. Acupuncture has helped me the most tremendously. If he’s not getting better and your desperate to try something, that’s not medication it has helped me with my status migraines more then any medicine did. Quote Link to comment Share on other sites More sharing options...
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