redpeach Posted February 1, 2018 Report Share Posted February 1, 2018 Has anyone came off of a benzo (Valium, Klonopin, Ativan, Xanax) with dysautonomia and been ok after? I'm tapering off of valium and it's been so hard. I also have MCAS too. Thanks everyone. Quote Link to comment Share on other sites More sharing options...
statesof Posted February 12, 2018 Report Share Posted February 12, 2018 Hey redpeach, to answer your topic question I did go to Mayo in MN for POTS though I do not have MCAS. They did do some thorough testing, though I was a neurology patient at Mayo since 2009 before my POTS got worse so I've had lots of tests done there over the years. I did think that their autonomic specialists were the best ones I've been to but it was more for diagnosis only, not for continued care. And for me since I seem to almost be suffering more from a complication of orthostatic hypotension than just POTS itself, they weren't able to help me get any better. I've never been to a place with better medical treatment with Mayo. Quote Link to comment Share on other sites More sharing options...
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