redpeach Posted October 28, 2017 Report Share Posted October 28, 2017 Has anyone started taking benzos AFTER they got diagnosed and then tried coming off? If so, did your dysautonomia get better, worse, or stay the same? Thank you so much. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted October 28, 2017 Report Share Posted October 28, 2017 I started Klonopin after my diagnosis. It helped. When I discontinued, I saw a return of the symptoms that I was taking it for. Any drug can be a tool, off label or on. You have to trust the prescribing doctor and weigh the risks vs. benefits. If I trusted my doc, I'd still be taking it. Quote Link to comment Share on other sites More sharing options...
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