Hormones and Vitamin D?

[vepa]

Hi everyone! My recent trip to the doctor included a lot of blood work. I had mentioned feeling fatigued (something I thought was simply a symptom of dysautonomia) and that my dizziness and blacking out was not getting better. I was hoping for some sort of treatment other than the salt and water I'd been told to consume. But my doctor focused on the fatigue alone rather than focusing on dysautonomia as a whole and said dysautonomia should not be causing fatigue, nor should it be causing the body temperature regulation issues I was having. So he checked for nutritional deficiencies, all of my hormone levels, and ran an ANA. It came back that my Vitamin D was incredibly low, my vitamin b12 was EXTREMELY high (even though I don't take any supplements and am pescatarian, which causes low b12 levels, not high) and my testosterone was very low.  I'm a 25 year old female, and testosterone levels for me should range between 15 and 70, and mine was at 5. 

So he put me on an incredibly high dose of vitamin D and a low dose of testosterone to see if that would solve the fatigue. He sent the bloodwork to a pharmacy to compound my testosterone, and they noticed my cortisol levels were also off, which might be causing the body temperature issues. So they called him back and suggested he refer me to an endocrinologist. I'm about to start taking the vitamin D and the testosterone, and I'm willing to see the endocrinologist, but I feel like I'm being sent down a rabbit hole. Maybe I should be grateful at the level of thoroughness, since medical care usually goes the opposite direction and I get no tests, but I'd been convinced that both the fatigue and the body temperature regulation issues are symptoms of dysautonomia. All I wanted was a low dose medication to try and stabilize my dysautonomia, and instead I'm being sent to ANOTHER specialist.  Half of me is happy I'm getting taken seriously, but the other half of me is very frustrated and tired of doctor's appointments.

Thoughts? Opinions? Has anyone else had similar hormone issues? 

[HangingByAThread]

I'm premenopausal but my hormone levels have always been fine when they were checked. However, before my period my POTS symptoms go totally off the charts.  I also have low vitamin D and was told to supplement that by my endocrinologist as well as B-complex. I hate the smell of the B-complex but notice a difference when I don't take it. 

[vepa]

3 hours ago, HangingByAThread said:

I'm premenopausal but my hormone levels have always been fine when they were checked. However, before my period my POTS symptoms go totally off the charts.  I also have low vitamin D and was told to supplement that by my endocrinologist as well as B-complex. I hate the smell of the B-complex but notice a difference when I don't take it. 

Yeah, prior to my period my symptoms get truly awful too. Tbh, before I was diagnosed, I often thought I just had really weird and extreme PMS symptoms, because the rest of the month I was practically fine and then the week before I would just pass out all the **** time. 

Do the Vitamin D supplements help noticeably? 

I'm still shocked my b12 was so high. It read as >2000, despite no supplements and an admittedly less than stellar diet. The doctor wasn't concerned about it though.

[Weyland]

Low vitamin d can cause fatigue ,muscle weakness , and it can also effect your immune system. The supplements will help ,but they can take a few months to get your levels back to normal . I had very low vitamin d levels when I first got ill. I think if I found that out earlier ,I could of stopped my body from getting so screwed up....

it's good your doctor is being thorough  . It's not always just dysautonomia problems....