StandUpSitDown Posted May 22, 2017 Report Share Posted May 22, 2017 I've been diagnosed with POTS since 2005, which was better diagnosed as AAG in 2011. I am lucky. I have an extremely supportive wife, a job that I can do leaningback with feet up, etc. I have learned to live with the difficulties just like most of you. Yesterday, my wife drove us an hour to a planetarium show. My symptoms decided to flare up just as we got there. As I said, I have an amazing wife. But I don't think I've been this blue about my condition in years. Amazing how I can work through day after day of limitations, and it's something absolutely trivial that gets me down. Quote Link to comment Share on other sites More sharing options...
Morrolan53 Posted May 28, 2017 Report Share Posted May 28, 2017 I know what you mean. For the last year or so, I've been managing POTS pretty well with a bad flare once every couple of months. Last week, my symptoms flared up while I was performing at a concert (something I'd practiced for for months) I had to run off stage before I fainted. The things we do every day to accommodate our limitations become just a part of life and, in a way, we can forget that we're sick at all. It's the bad days, the little unexpected things, that remind us of what we've lost, that we are sick. Quote Link to comment Share on other sites More sharing options...
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