Jane Qld Posted August 24, 2016 Report Share Posted August 24, 2016 Hi All I have all the symptoms of dysautonomia with the exception of heart symptoms. My heart is probably the only thing that works well. I would like to know if anyone can recommend some good dysautonomia specialists in Australia who would be capable of focussing on other aspects of the condition. (Most of the doctors I've read about seem to be cardiologists) At present, my digestion is so poor that I can eat only white bread. Having done this for a number of years, I'm on the verge of malnutrition. I also suffer from debilitating headaches because of fibromyalgia and almost all of the other symptoms mentioned on dysautonomia websites. I live in SE Qld, but I would be happy to travel to Sydney, Melbourne, Canberra or even Adelaide to see the right specialist. Quote Link to comment Share on other sites More sharing options...
Katybug Posted August 24, 2016 Report Share Posted August 24, 2016 Jane Qld, I'm at a doctor's appt right now but I'll send you 3 names later tonight via private message that a member sent to me for our physician list. They haven't responded so they aren't on the list currently. Katie Quote Link to comment Share on other sites More sharing options...
Katybug Posted August 24, 2016 Report Share Posted August 24, 2016 In the meantime, there are two that are on the list in AU: http://www.dinet.org/index.php/physician-list Quote Link to comment Share on other sites More sharing options...
AngieP Posted August 25, 2016 Report Share Posted August 25, 2016 Hi Jane, A Neurologist called Dr Judy Spies specialises in autonomic disorders at Royal Prince Alfred Hospital, Camperdown, Sydney. I found her very helpful. Good luck with it all! Cheers, Angie Quote Link to comment Share on other sites More sharing options...
Macca Posted August 25, 2016 Report Share Posted August 25, 2016 Hi Jane A few Brisbane based doctors who maybe suitable for you: Professor Pamela McCombe - Neurologist http://standrewshospital.com.au/doctors/Pamela-McCombe Dr Rob Henderson - Neurologist http://wesley.com.au/doctors/Robert-Henderson Prof McCombe is my current treating specialist and she has an excellent knowledge of Dysautonomia. I know her waiting list isn't too bad at the moment. Dr Henderson has an excellent reputation, but I haven't seen him and I don't know how long the wait is to see him at the moment. Dr Gary Deed - GP http://www.mediwell.com.au Dr Deed is a great GP, who has good knowledge of Dysautonomia - though I think he will refer you to a specialist for ongoing care. I think he maybe able to assist specifically with your digestion/nutrition issues. Outside of Brisbane, I have also seen Dr Chris O'Callaghan in Melbourne. He is really fantastic, but has a particular focus on the blood pressure/hypotension issues. I'm not sure he would be able to assist with digestion issues - but you can ring his office to check. There are some other neuros in Melbourne who are good with this stuff, but probably no better than Prof McCombe or Dr Henderson who are closer to you. Best of luck and I hope you get the help you need soon. Quote Link to comment Share on other sites More sharing options...
Jane Qld Posted September 10, 2016 Author Report Share Posted September 10, 2016 Thanks to everybody who replied! I have contacted one of the specialists mentioned and will hopefully get an appointment in January of next year. I'll let you know how I get on. Cheers, Jane. Quote Link to comment Share on other sites More sharing options...
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