Xhale1991 Posted October 3, 2015 Report Share Posted October 3, 2015 I really need some help. I get these major adrenaline surges a few times every week. Some times I am able to calm myself down before they spiral out of control. When I'm not able too, my body goes nuts. I get major convulsions to the point where it looks like I'm having a seizure, if not worse. My entire body shakes uncontrollably for 30 minutes or so and I can barely talk. I even strained my back one time because of how violent the shaking was. In addition my BP spikes up high and my heart rate becomes very fast. Does anyone else experience these? It's landed me in the ER several times and they are unable to tell me why it keeps happening to me. It's always just attributed to stress and anxiety. Does anyone else experience these? Is it normal in POTS? I'm a nervous wreck. Quote Link to comment Share on other sites More sharing options...
Debbie Rose Posted October 3, 2015 Report Share Posted October 3, 2015 Hi XHale- that sound so horrible and frightening!My doctors-not yet diagnosed-feel it is a punch of adrenaline which causes my symptoms but they are nothing as severe as yours.Have you seen any cardiologists for this yet?An EP cardiologist works with rapid heart rate for all kinds of reasons-adrenaline included and may be able to helpBoth my Mom and youngest Sister had sustained SVT due to excitement (my mom) and emotional stress (my sister)-it is genetic in our family going back 3 generations nowMy Mom's was just a few beats when she was younger but became worse with age-the cause?-excitement from company coming, or me coming to take her out to the movies and eventually her "thinking" about doing things. She eventually had an Ablation 3 times and then a pacemakerMy sister's symptoms was related to work stress and a bad break up-she too was ablated. My heart goes both low at rest-45 to 55 and when bad it goes to the 130-150's. But since my resting is so low that rate causes all the other symptomsI would encourage you to seek you PCP's advice and referral to a specialist-it is a horrible feeling and if it is an irregular or dangerous rhythm your heart will eventually become stressed tooHope this helps, and keep us updatedDebbie Quote Link to comment Share on other sites More sharing options...
Debbie Rose Posted October 3, 2015 Report Share Posted October 3, 2015 Sorry, wanted to explain SVT for you-it can be a dangerous rhythm if it stays up-my Mom's would go to 240-280 and my sisters to 280-300 with dizziness, near fainting, shaky all over, shortness of breath for the length of time of the rhythm.If you ever see Emergency shows SVT lasting a "long" time can need cardiac "zap" with a defibrillator if meds don't work (but they usually do-better meds these days)Has the docs in ER ever say what the rhythm is when you are there?Debbie Quote Link to comment Share on other sites More sharing options...
Xhale1991 Posted October 3, 2015 Author Report Share Posted October 3, 2015 Interesting Debbie. I've never heard of SVT. I'll do some research thanks. Is there anything I can use to see if it is SVT during an episode? Would a doc be able to tell if I have it if I'm not in the middle of an attack? Quote Link to comment Share on other sites More sharing options...
Xhale1991 Posted October 3, 2015 Author Report Share Posted October 3, 2015 Sorry, wanted to explain SVT for you-it can be a dangerous rhythm if it stays up-my Mom's would go to 240-280 and my sisters to 280-300 with dizziness, near fainting, shaky all over, shortness of breath for the length of time of the rhythm.If you ever see Emergency shows SVT lasting a "long" time can need cardiac "zap" with a defibrillator if meds don't work (but they usually do-better meds these days)Has the docs in ER ever say what the rhythm is when you are there?DebbieThe only thing that has helped me fend off these attacks is propranolol. I think because it blocks the adrenaline.However recently I've begun to develop Bradycardia. For 2 years I was always tachy and my resting HR was about 90-100. Over the past month it has dropped to 40-50. Not idea why but it feels very weird, especially when laying down. However it will still get up to 120-13- if I go from laying down to standing. Maybe my heart is just worn out. I know the propranolol will help me with the adrenaline rushes but I'm scared to take it now because of how slow my heart beat is. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted October 3, 2015 Report Share Posted October 3, 2015 Hi Xhale,It sounds like you should contact a doctor, preferably a cardiologist if you have one, since we can't give medical advice here on the forum. From what I understand Episodes of SVT can be caught on an EKG.. do you have a cardiologist or doctor who can set you up with a holter monitor (I wore one for 30 days) to record the bouts of what your describing? Have you ever looked into IST - Inappropriate Sinus Tachycardia? Some patients can experience episodes of tachycardia and bradycardia (mainly at night I believe).http://heartdisease.about.com/cs/arrhythmias/a/IST.htmhttp://content.onlinejacc.org/article.aspx?articleid=1486711 I know where you're coming from with the convulsions. I was diagnosed at the Cleveland Clinic with generalized Epilepsy, which was originally misdiagnosed as Non Epileptic Seizures. They weren't sure in the beginning if they were dysautonomia related or not. I've had concussions and have also injured myself, as you describe it's really terrible. An EEG performed may be helpful for you if you haven't already had one at the ER after an event that's occurred. I'm wishing you the best. I really feel for you. I'm on medications to control the seizures, but for about 3-6 months I was having sometimes up to 3-5 a day while they were still trying to figure out what was going on. Do you have a neurologist?Take care of yourself!Sarah Quote Link to comment Share on other sites More sharing options...
Debbie Rose Posted October 3, 2015 Report Share Posted October 3, 2015 Hi Xhale, As Sarah said the specialists can tell you more, especially cardiologist who will also explain and evaluate your use of your propranolol. Everyone has a varied reaction to medicines so even the same med and dose can help one and not the other.Sorry to say a doctors visit is in order. To answer your SVT question-as Sarah stated there are different types of tachycardias and no, it can not be determined without and EKG (electrocardiogram) And I had a 21 day monitor on me-they are very small now a days-to help them see my episodes. That could be helpful too. Hope this helpsPlease keep us updatedDebbie Quote Link to comment Share on other sites More sharing options...
statesof Posted October 4, 2015 Report Share Posted October 4, 2015 I haven't quite had these attacks that you have, but I have noticed that when I am in specific anxiety inducing situations, and I say specific because I can have different amounts of daily anxiety that doesn't cause this, my body will literally start to shiver like you would if it were really cold in the room, and it does seem more difficult to talk. i did think it had something to do with too much adrenaline but never understood why this would happen. Quote Link to comment Share on other sites More sharing options...
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