looneymom Posted July 20, 2015 Report Share Posted July 20, 2015 If you are dealing with tremors, these articles might be of some help. Tyler is holding his own so far but he still tremors off and on throughout the day. He is not able to do leg marches while sitting in a chair but I am hoping this will eventually come. When you have had antibodies in the body that have messed up the brain transmitters it takes time to retrain the brain for correct movements. Tyler's body has become deconditioned because of these antibodies not because of POTS. So anyone that tells you POTS is caused by decondition is wrong. Tyler had the Cunningham Test that revealed high Basal Gangla Antibody levels. He was never been diagnosied with PANS/PANDAS because he did not fit the NIH criteria. However, these antibodies can cause permanent movement disorders if they have caused damage to the basal gangla . These antibodies have also been found in adults. However, what has caught my attention is specific antibodies cause specific problems. Tyler had the Cunningham test that checks for 5 different antibodies. Tyler's Dopamine 1 and Cam Kinese II levels were high but his other 3 antbodies were in the normal range. However, his Dopamine 2 was the last number on the normal range level. I found a few research articles on how these specific antibodies (Dopamine 1 and 2) can cause movement disorders. So I am concerned if these antibodies have caused a movement disorder and if it will go away. Here are the links to those articles. Time will only tell if Tyler has permanent movement disorder. Tyler has one more plasma exchange treatment next week and then he will go off them for a month to see what happens.http://www.neuroanatomy.wisc.edu/coursebook/motor2.pdf http://www.apiindia.org/pdf/pg_med_2004/chapter_30.pdfhttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC2929378/http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3705177/ Quote Link to comment Share on other sites More sharing options...
Katybug Posted July 20, 2015 Report Share Posted July 20, 2015 Thanks, Rachel. I always wonder if there isn't some post-strep issue with me. I have very mild tremoring sometimes, so I don't think I have a movement disorder per se, but I had severe cases of strep quite often through my childhood including Scarlet fever. It makes me wonder if it didn't leave behind some aftermath. Quote Link to comment Share on other sites More sharing options...
corina Posted July 20, 2015 Report Share Posted July 20, 2015 Thanks for sharing Rachel! Quote Link to comment Share on other sites More sharing options...
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