looneymom Posted May 29, 2015 Report Share Posted May 29, 2015 This week has been so exciting for this momma bear. Tyler was able to do ankle flexes wthout causing extra tremors. He was also able to use his feet to to pedal on the floor pedal exerciser. This did not cause tremors in his legs, ankles, or feet afterwards. This is major progress for him. He has not been able to pedal for over 2 1/2 years. He is excited about trying his reclined stationary bike next week.He is doing one treatment of pex a week and I have been trying to wean him off some other medications to see if those medications were helping or hurting him. His cardiologist also wanted to know what was helping because he felt like this would provide other clues to Tyler's medical condition. I tried to wean Tyler off of the Namenda but that was a no go. His headache pain level was at a 6/10 but jumped all the way back up to a 9/10. Namenda helps regulate NMDAR receptors and this receptors release glutamate. Tyler's past neurotransmitters testing has shown high glutamate levels. High glutamate can cause headache and neurological problems. The next medication I was told to wean him off was Zoloft. So I really did some research and was concerned about side affects of coming off this medication. Starting cutting down on this medication this week. So far so good. Our doctor is pleased but concerned. Tyler has had problems with low serotinon in the past, and high dopamine levels in the past. Hope everyone has a good weekend and stays out of the flood waters. Quote Link to comment Share on other sites More sharing options...
Katybug Posted May 29, 2015 Report Share Posted May 29, 2015 Rachel,This is tremendous news for your family, and especially for Tyler! He is really an inspiration to me and so are you, Momma Bear! I am always thinking good thoughts for you all!Thanks for the update!Katie Quote Link to comment Share on other sites More sharing options...
Chaos Posted May 30, 2015 Report Share Posted May 30, 2015 Yay!!! This is super exciting news for both you and Tyler. So happy to hear all your research and efforts on his behalf seem to be making some serious signs of progress for him. Sure hope it keeps moving in an upward trend. Thanks for sharing the good news. Quote Link to comment Share on other sites More sharing options...
gjensen Posted May 30, 2015 Report Share Posted May 30, 2015 This is great news Rachel. I was wondering. I hope to hear more. Quote Link to comment Share on other sites More sharing options...
corina Posted May 30, 2015 Report Share Posted May 30, 2015 Great news Rachel! SO happy for Tyler! Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted May 30, 2015 Report Share Posted May 30, 2015 Hi Rachel! It's so great the progress that Tyler has made, both of you have so much determination! You definitely always have been an inspiration to us all to keep pushing forward Quote Link to comment Share on other sites More sharing options...
Psalm 23 Posted May 30, 2015 Report Share Posted May 30, 2015 How wonderful to hear that Tyler is making progress. What great news ! I hope we hear of continued improvement. Thanks for sharing Rachel. Quote Link to comment Share on other sites More sharing options...
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