gjensen Posted April 9, 2014 Report Share Posted April 9, 2014 I am getting this in misc. places today. This is new to me.A thumb, pinky, and feet. Quote Link to comment Share on other sites More sharing options...
~elizabeth~ Posted April 9, 2014 Report Share Posted April 9, 2014 What medications are you on? A number of POTS meds (betablockers, midodrine, clonidine etc) can all cause peripheral numbness. I was on clonidine and/or propranolol for a long time, and assumed it was due to the drugs, but it finally turns out its due to small fibre neuropathy, which appears to have now become very aggressive. Tingling or electric shock sensations (dysaesthesias) are characteristic of small fibre neuropathy, which can affect both sensory and autonomic nerves. Quote Link to comment Share on other sites More sharing options...
gjensen Posted April 9, 2014 Author Report Share Posted April 9, 2014 I have SFN, and suspect that is what it is. Not certain, because this is new. Now it is in my right calf. Quote Link to comment Share on other sites More sharing options...
Macca Posted April 9, 2014 Report Share Posted April 9, 2014 Hi gjensen - I get numbness and tingling quite frequently, in my hands and feet mostly. I've never had a good answer as to why - I had nerve testing and that was generally ok. I find it is worse when I have overdone things physically and it can be a warning sign I need to have a rest. Quote Link to comment Share on other sites More sharing options...
Suthrngal Posted April 9, 2014 Report Share Posted April 9, 2014 Same. Feet mostly. No idea why? Docs day try meds but its better sometimes so there is a cause. Quote Link to comment Share on other sites More sharing options...
gjensen Posted April 10, 2014 Author Report Share Posted April 10, 2014 Macca/Suthrngal,Who knows? My feet are normal now, my leg is, but my pinky and thumb is not. LOL.I was getting these little ant bite type stings with it.We will see what tomorrow brings. Quote Link to comment Share on other sites More sharing options...
castronovo112587 Posted April 10, 2014 Report Share Posted April 10, 2014 I get it too. You can get it from fobromyalgia and also if you are deficient in somthing such as b12, calcium or potassium. Quote Link to comment Share on other sites More sharing options...
gjensen Posted April 10, 2014 Author Report Share Posted April 10, 2014 I am reasonable certain that I have no deficiencies. Have not up to this point anyways. I have it today again. Left thumb is sticking with me. Now includes the right cheek, and right leg. it is not the most concerning of my symptoms, but interesting because it is new. Not like this anyways. Hope all is well with you Rosey. Quote Link to comment Share on other sites More sharing options...
Chaos Posted April 10, 2014 Report Share Posted April 10, 2014 I had gotten to the point where I was having these paresthesias in most of my body about 95% of the time. I think this is where the antivirals made the most significant and long-lasting improvements as they have gone completely for the most part since I've been on them. Quote Link to comment Share on other sites More sharing options...
gjensen Posted April 11, 2014 Author Report Share Posted April 11, 2014 Chaos, that is interesting.I had it, mostly, earlier today. Now it is just my thumb, LOL. But it is actually numb. I have lost most of my feeling in it. I dropped something a couple times today from that hand. Thumbs are pretty important. This can have my pinky, LOL. Just leave my thumb alone.Everything else is coming and going. Quote Link to comment Share on other sites More sharing options...
castronovo112587 Posted April 12, 2014 Report Share Posted April 12, 2014 All is ok gjensen . My numbness and tingling was explained to be from my fibro. Have you ever looked into fibro since you have headaches and other pain. Also o mist say that after eating a clean diet my headaches and numbness and brain fog have decreased by 80%. Somthing to look into. Hope you are feeling better today. Quote Link to comment Share on other sites More sharing options...
Goschi Posted April 28, 2014 Report Share Posted April 28, 2014 I get extreme tingling (and sometimes even shaking) in my feet (mostly soles) and lower legs always right after I was upright only for a short time. Sometimes 5 minutes on my feet can result in 2 hours of extreme tingling. I have a very mild small fiber neuropathy in my lower legs. However, I can't imagine this to cause such an intense and longlasting tingling after a couple of minutes on my feet. Quote Link to comment Share on other sites More sharing options...
gjensen Posted April 28, 2014 Author Report Share Posted April 28, 2014 I do not know what that is Goschi. I do get it to. Mine has become more of a burning sensation that is affecting all of both legs. More intense in the lower legs. How long ago was you tested for neuropathy, and how were you tested. Mine showed on a Qsart test and skin biopsy. They would probably would have been considered on the mild side. I had the Qsart test done at one place and the doctor seamed eager to dismiss the results. I had a reduced (abnormal) response in one location and no response in another. The rest were normal, and he still dismissed the results, which made me wonder why he did the test at all. The skin biopsy with another doctor was positive. It could be said that it was on the mild side. The samples are so small that I have a hard time believing that they can be considered indicative of the whole. I have only recently noticed the sensation associated with being upright. I noticed this yesterday and the day before. What I noticed was that it was worse after being upright. Quote Link to comment Share on other sites More sharing options...
Goschi Posted April 28, 2014 Report Share Posted April 28, 2014 gjensen,I had a skin biopsy both for sensory and sudomotoric nerves, no Qsart. The biopsy came back negative for the thighs and very mildly pathological for the lower legs. It was done 5 weeks ago. My symptoms with severe and longlasting tingling after being upright were present already before and didn't change since then.My Pots neuro doc is convinced that the small fiber neuropathy and the Pots are connected (ok, what else?) but that the tingling is actually not from the SFN but rather from blood pooling. Quote Link to comment Share on other sites More sharing options...
gjensen Posted April 28, 2014 Author Report Share Posted April 28, 2014 I did wonder if your tingling was from the blood pooling. I hesitated to say so, because yesterday being upright and moving around seamed to aggravate the burning sensation that I am saying is from the neuropathy. Maybe it was just a coincidence. I do not know that the shaking you described would be from blood pooling. Quote Link to comment Share on other sites More sharing options...
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