houswoea Posted February 18, 2014 Report Share Posted February 18, 2014 Guys, I know I say this like every week. But I'm reaching the end of my coping skills. It hurts so much. I don't understand how I can live the rest of my life like this. The pain is just too much. I know, wahwah. I just wanted to express that to somebody out there. Quote Link to comment Share on other sites More sharing options...
Bambamjr2013 Posted February 18, 2014 Report Share Posted February 18, 2014 Ive said the same thing as well. Headaches, lower back pain and neck pain as well. You probably have Family that Love you like I do. We have to remember them and keep pushing. If I could give you a hug I would. We will get thru this. Keep your head up and God Bless Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 18, 2014 Report Share Posted February 18, 2014 Houswoea,What kind of pain is it you are experiencing? You have my empathy. So many of my parts hurt chronically, I don't even notice some of it anymore until something brings it into my consciousness and I'm like "Oh yeah...it still there just like an old friend." Except you want friends to stick with you forever. ...not your pain. Quote Link to comment Share on other sites More sharing options...
looneymom Posted February 18, 2014 Report Share Posted February 18, 2014 Have the doctors checked your D levels and B-12 levels? If you are in the normal range on the test but at the low end of the normal range then that might be your problem.Tyler's D levels are 3 points from being in range. From research through POTS doctors, they suggest the better range for D is at the higher end. Mt son's test range was 45-100. The doctor wants to see his at 80 or higher because he does not get any sun. My oldest son got in trouble with his D levels last year and he could not stand to walk and was hurting all over.Tyler's B-12 levels have also dropped and he was on a 100% complete B complex. He now takes a methylcobalamin B-12 shot which absorbs very easily into the body. Since this shot has been started, Tyer is more alert and has less fatigue during the day. I had know idea that some forms of B-12 are harder on the liver to break down. After doing some more research on this form of B-12, I learned about more of the symptoms in this type of defiency. Just because a blood test says you are in range does not mean that is a good level for your body to be at and feel decent. One other vitamin defiencey that will cause a lot pain is low iron. I had a severe Iron defiency when I was in my teenage years. I was a runner and I had no energy. My legs hurt all the time and had a terrible headache. So you might need to get iron levels checked.Rachel Quote Link to comment Share on other sites More sharing options...
Chaos Posted February 18, 2014 Report Share Posted February 18, 2014 When I was whining to my doc at my last appointment about my pain, he suggested trying magnesium and curcumin (turmeric) before trying yet another med. It has taken a bit of the edge off and I was all for not adding any more meds. There are quite a few studies out there supporting the use of these particular supplements. Quote Link to comment Share on other sites More sharing options...
gjensen Posted February 19, 2014 Report Share Posted February 19, 2014 And if you feel compelled to say it, say it. What I experience is different than what you experience. I cannot relate. If I could take it and carry it for a while, I would. I wish that I could. I wish there was something that I could say or do. I will say to keep your head up. It will not always be like this, and you have to continue looking ahead. Quote Link to comment Share on other sites More sharing options...
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