SarahA33 Posted January 6, 2014 Report Share Posted January 6, 2014 Hi there everyone,I hope you all had a nice new year. The holidays are over which is a relief for me..A few posts ago I mentioned starting a medication, Verapamil (calan) for the bouts of SVT i was experiencing. It's actually helped and I rarely get episodes of that any longer since starting it.... it's a short acting 3x per day medication for me now. I don't mind the medication as long as the symptoms are under control.I've increased the midodrine and that seems to be helping also. No side effects from the midodrine like when I first started it so that's a plus. I've been able to go 7 weeks now wtithout a trip to the ER for fluids so that is pretty positive. Normal is between 4-6 weeks. I also started a medication called meclazine, typically Rxed for Vertigo, and was given to me to take during the migraines since they cause a great deal of that. I've been starting to add that to my med reg and it seems to be helping a lot.. . I'm trying here guys..You all have been there for me through some really rough times, so I thought I would update you on how I'm making improvements and doing okay. Im doing the best that I can, which is what all of us do on a daily basis, and trying really hard to figure out how I'm going to fit my pots into the rest of my future. I wish everyone a very happy new year and I hope that this year brings us all some peace and less setbacks. Thinking of you all Quote Link to comment Share on other sites More sharing options...
Psalm 23 Posted January 7, 2014 Report Share Posted January 7, 2014 Hi Sarah,I'm so happy to hear of your perseverance and improvements. How wonderful that you are able to manage a full time job in spite of such significant challenges. Here's to a New Year of continued improvement. Take care not to push yourself too hard though.Janet Quote Link to comment Share on other sites More sharing options...
corina Posted January 7, 2014 Report Share Posted January 7, 2014 Thanks for letting us know Sarah! Amazing you have been able to work! Here's to continued improvement, you are an inspiration to us! Quote Link to comment Share on other sites More sharing options...
looneymom Posted January 7, 2014 Report Share Posted January 7, 2014 So happy for you Sarah! Glad that you have found some medications that help. Finding the right treatment is the key to help get your body on track. Wishing you the best in 2014.Rachel Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted January 7, 2014 Author Report Share Posted January 7, 2014 Janet, Corina and Rachel, Thank you ladies for the encouragement and the support. I hope you are all doing well Rachel, how is Tyler doing? Quote Link to comment Share on other sites More sharing options...
gjensen Posted January 7, 2014 Report Share Posted January 7, 2014 That is good news Sarah. Glad to here that you are getting some relief. I hope that I do as well as you in accepting my situation. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted January 7, 2014 Author Report Share Posted January 7, 2014 gjenson,I think acceptance is going to be an on going process for me. Meaning, I don't think I'll ever fully be able to accept that I am going to be dealing with this for "X" amount of years to come. But, I have to stop thinking about it so much, and am learning that I need to not be so hard on myself. I have learned in counseling how to start "catching my thoughts" so to speak, and then remind myself that I'm doing the best that I can.The emotional effects and tole this has taken has been just as challenging as the physical elements. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 7, 2014 Report Share Posted January 7, 2014 Sarah--I am glad you have a helpful treatment regime in place and are doing so much better. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted January 7, 2014 Author Report Share Posted January 7, 2014 Katherine, hope you are feeling well and surviving the storm!! Parts here in buffalo declared state of emergencies and driving bans all over the place. Negative 7 is so much fun. Wind, snow, and whiteout's..oh my! Thank you for the positive thoughts. Quote Link to comment Share on other sites More sharing options...
kitt Posted January 9, 2014 Report Share Posted January 9, 2014 Good for you Sarah! You're doing a good job of balancing your new job and making peace with pots. Making peace with a chronic illness is a process, so be patient. Smiles...Best,K Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 9, 2014 Report Share Posted January 9, 2014 Sarah--I saw how much snow your area was getting + the exteme cold! Hope you stay warm and safe! It is warming up here now into the 30's Quote Link to comment Share on other sites More sharing options...
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