andybonse Posted December 19, 2013 Report Share Posted December 19, 2013 Hello ,Does anyone know of, or anyone here that has EDS caused AD/POTS that have gotten a lot better, improved or complete recovery?Trying to put together lots of statistics . This can include living a normalish life, then suddenly get worse for a year or two then better. Quote Link to comment Share on other sites More sharing options...
arizona girl Posted December 19, 2013 Report Share Posted December 19, 2013 Our founder Michelle did. You can read her story at the top of the forum. Quote Link to comment Share on other sites More sharing options...
andybonse Posted December 19, 2013 Author Report Share Posted December 19, 2013 Can you link me please cant find it lol. Quote Link to comment Share on other sites More sharing options...
arizona girl Posted December 20, 2013 Report Share Posted December 20, 2013 Sorry, It looks like they unpinned the post it was in the farewell one to her that was pinned. The story might also be in one of the newsletters. I know she is managing it well enough to just be finishing up law school. I'll ask around if you can't find it. I don't have time to look for it right now.The Katie Couric show just did a story on EDS last week. I think you can still see the video on her website. Quote Link to comment Share on other sites More sharing options...
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