americaneagle32 Posted July 12, 2013 Report Share Posted July 12, 2013 Does anyone feel like their symptoms are worsened and episodes are more frequent in the summertime heat?I was diagnosed with Neurocardiogenic Syncope about 10 years ago. I live in FL and this summer I have been struggling with the heat. I usually manage my condition pretty well but as of recently I have been having episodes at least 1-2 times a week. I work and go to school so my current schedule is pretty packed. I hate feeling like my life is being jeopardized because of this. I recently have had to call out of work from episodes. When I first was diagnosed I couldn't go a full day without have an episode. I sometimes would lay there for hours on end in dizzy spells. I finally found the right specialist and the right medicine (proamatine). I was on the proamatine for close to 8 years. I currently haven't been on any time of medicine for about 5 years.Since that time I feel like I have come a long way. I would have an episode once every couple months and not nearly as serve. I was able to get off the medicine and I had maintained my condition fairly well. The biggest thing I dealt with being off proamatine is chronic fatigue. I have been making sure I keep up with my fluid and salt intake, electrolytes, and keeping my feet up anywhere I go. This has all worked well for me up until now. I feel like the harsh heat is triggering my condition. I don't want to feel defeated or have it overcome my life.Even though I'm not a fan of taking pharmaceuticals long term, I starting to think that maybe going on a regular prescription is the best route at this point. I've also been looking into some natural remedies to implement into my diet. If anyone uses anything or knows of anything feel free to share.Some things I found were Vitamin C and E, Gingko and ginger root for Low blood pressure. And for poor circulation Vitamin C and E as well, evening primerose oil, cayenne and garlic. Quote Link to comment Share on other sites More sharing options...
looneymom Posted July 13, 2013 Report Share Posted July 13, 2013 Have you had your iron checked lately? Low iron can cause fatigue issues. You might want to add a B complex. It helps with blood pressure and energy levels. My son also takes magnesium citrate which is good to help regulate blood pressure. He has low blood pressure and cannot be without midodrine. The summer heat is hard on him also. Welcome to the forum. Stay as active as you can but be careful in the heat. Quote Link to comment Share on other sites More sharing options...
americaneagle32 Posted July 13, 2013 Author Report Share Posted July 13, 2013 Looneymom,Actually this past spring when I had my blood work done they said my iron was low. And I'll admit while I have iron tablets I haven't been taking them. Last night I went to Whole Foods and got B-Complex 50. I will go pick up some magnesium cirate as well! Thank you! Quote Link to comment Share on other sites More sharing options...
Aubreeisme Posted July 15, 2013 Report Share Posted July 15, 2013 The heat defiantly effects me. Anything over 75 degrees and I start feeling seriously ill. And of course I live in the desert where it is at least 100 out all summer long. So I'm pretty much stuck in my house with the a/c blasting. Quote Link to comment Share on other sites More sharing options...
americaneagle32 Posted July 17, 2013 Author Report Share Posted July 17, 2013 @Aubreeisme, I feel you. It's been a hot summer. I'm good until about 88. It seems like the days it's in the upper 80's and 90's my symptoms are worsened. Quote Link to comment Share on other sites More sharing options...
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