magentastardust Posted July 2, 2013 Report Share Posted July 2, 2013 Hi everyone!I am new to the forum. Not new to the dysautonomia/POTS world though as I was officially diagnosed a few years ago and have been suffering for a long time. I am currently trying to figure out the cause of my POTS as my symptoms are progressing. My rheumatologist advised for me to seek out a neurologist who specializes in dysautonomia but couldn't give me any recommendations. I live in the Pittsburgh, PA metro area and was wondering if any of you could give me recommendations? I am willing to travel if you know of any good ones in the tri-state area.Thanks for your help.-Dana Quote Link to comment Share on other sites More sharing options...
Krissy21 Posted July 2, 2013 Report Share Posted July 2, 2013 If you are willing to travel to Cleveland, OH, the Cleveland Clinic has several doctors that specialize in dysautonomia. Dr. Shields is a neurologist that specializes in dysautonomia. I have not seen him personally but I have heard good things about him. I see Dr. Jaeger who is an electrophysiologist that specializes in dysautonomia. I have been pretty happy with him so far. I have had all the autonomic testing done there and have a treatment plan that seems to be helping. I still have some symptoms but no where near as bad as they were a couple months ago and my blood pressure is under control now. Quote Link to comment Share on other sites More sharing options...
magentastardust Posted July 3, 2013 Author Report Share Posted July 3, 2013 Thanks so much! I just made an appointment with Dr. Shields. I pretty much exhausted my resources here. The neurology department at UPMC wanted to refer me to Mayo Clinic and that's just a little too far away for me right now. Hopefully Dr. Shields can help. Quote Link to comment Share on other sites More sharing options...
Krissy21 Posted July 3, 2013 Report Share Posted July 3, 2013 You're welcome! I'm glad I could help. I hope he can give you some answers about what's causing your dysautonomia and start some sort of treatment to help you feel better. Quote Link to comment Share on other sites More sharing options...
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