andybonse Posted June 20, 2013 Report Share Posted June 20, 2013 Hello,What are the main symptoms of this?I have tried to find some things, when they say hot flushing, what is this?I have always had a red rash on my chest when I get hot like a heat rash? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted June 20, 2013 Report Share Posted June 20, 2013 You might try a search of the forum as there have been many previous discussions about this.Here is one Topic that might get you started:http://forums.dinet.org/index.php?/topic/22558-newbie-pots-mast-cell-disease-and-lots-of-pain/?hl=%2Bmast+%2Bcell+%2Bdisease Quote Link to comment Share on other sites More sharing options...
Christy_D Posted June 20, 2013 Report Share Posted June 20, 2013 Here is a link to a brochure that lists the symptoms as well.http://mastocytosis.ca/MSC%20Information%20Pamphlet.pdf Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted June 20, 2013 Report Share Posted June 20, 2013 Andy,Here is an article you may find interestinghttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC3069946/Mast cell activation disease: a concise practical guide for diagnostic workup and therapeutic optionsparticularly table 3 Frequent signs and clinical symptoms ascribed to episodic unregulated release of mast cell mediatorsBest,Alex Quote Link to comment Share on other sites More sharing options...
andybonse Posted June 20, 2013 Author Report Share Posted June 20, 2013 I cant really say I have many of them symptoms,Only that I associate with POTS such as higher hr when standing up. I guess many people get MCAS without POTS and MCAS is just another unlucky thing to get a long the way .I'm sure I'd of had hives and rashes and tachycardia when sat down doing nothing if MCAS was my culprit! Quote Link to comment Share on other sites More sharing options...
brethor9 Posted June 20, 2013 Report Share Posted June 20, 2013 In some people MCAS can actually be the cause of their Dysautonomia/POTS; like me but MCAS symptoms also manifest differently for everyone just like POTS....Bren Quote Link to comment Share on other sites More sharing options...
Suthrngal Posted July 19, 2013 Report Share Posted July 19, 2013 Bren...how do you treat this? I have soooo many of these symptoms listed on the links above. Quote Link to comment Share on other sites More sharing options...
Christy_D Posted July 19, 2013 Report Share Posted July 19, 2013 The first line of treatment is H1 and H2 antihistamines, like Zyrtec and Zantac or Claritan and Pepcid. Quote Link to comment Share on other sites More sharing options...
futurehope Posted July 19, 2013 Report Share Posted July 19, 2013 Andybonse,I do not get tachycardia, hives or rashes when sitting down. I have mast cell activation syndrome and POTS. Several times I have asked my MCAS why I do not get hives or flush, and could I possibly have MCAS without them? He has always responded "yes". Quote Link to comment Share on other sites More sharing options...
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