jangle Posted April 16, 2013 Report Share Posted April 16, 2013 I've seen publications recently about both these treatments being effective in treating POTS, but none of my doctors I believe have even heard of their use in POTS, and even if I brought them the studies I doubt they would consider it.I know a few people on this forum have tried octeotride with success, but has anyone tried EPO? Quote Link to comment Share on other sites More sharing options...
roxie Posted April 16, 2013 Report Share Posted April 16, 2013 I took EPO shots years ago. It did start to help, I wasn't blacking out everytime I stood up and it raised my blood counts. After being on it for a while I started getting really bad migraines and then one started that wouldn't go away, I ended up in the hopsital and they had me stop it. The migrain eventually went away but I never restarted the EPO. the shots are super painful. It was 10 years ago, maybe dr's are stricter with prescribing it now since it got a black box warning? Quote Link to comment Share on other sites More sharing options...
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