Arizona Autonomic Doctors

[lillybits]

does anyone know of any autonomic specialists that take the state insurance? I just got denied the mayo clinic and live out in kingman but am willing to travel anywhere that i need to for health care.My primary was sure I could get referred to mayo but insurance denied it. Also is a rhumatologist a good place to go for ehlers danlos?Thats where i gt referred to. I used to see a geneticist in wisconsin for it.

thank you, kim

[issie]

I've been trying to find a good rhumey for EDS here ---but, can't seem to find one that is especially liked for this. I'm in touch with the local EDS group here in Phoenix and no one is especially happy with their docs on that one. There are some doing physical therapy and some going to pain management centers. But, there is very little that can be done --except to mask the pain, try to keep muscles as tight as possible to protect joints, stablize with splints and be very careful to not fall and break something. It's one thing that very little is known what to do for it.

As for POTS my main doc is at Mayo - Dr. Goodman. I have a lot of docs outside of Mayo - but all specialty docs - endocronologist, nephrologist, Liver disease specialist, internal medicine and know a good GI doc that my husband saw. Also know a general surgeon that my husband used and liked too. I also have a good doc for Lyme/protozoa infections and he also deals with autoimmune things. But, other then those --not sure. I also like the allergist/immunologist at Mayo and understand there is a new doc there for that too. The doc that DX'd my EDS is also at Mayo ---but, they really don't tell you much of what to do about EDS. Most of the docs for EDS are on the East Coast.

Issie