jpjd59 Posted August 4, 2012 Report Share Posted August 4, 2012 My daughter has hyper-POTS which we now believe is the cause of her POTS symptoms. I am trying to find a doctor for her that knows about MCAS/MCAD but that does not require that she has the diagnosis before she sees them.We live in the San Francisco Bay Area and I wondered if anyone knows of a good doctor in our area who is knowledgeable about MCAD/MCAS.Thanks!Pam Quote Link to comment Share on other sites More sharing options...
issie Posted August 5, 2012 Report Share Posted August 5, 2012 I don't know of anyone there - but, I understand there is a new doc coming to Mayo in AZ. Some are scheduled to see him soon and it will be interesting to see what he has to say.So, you are thinking her HyperPOTS is caused by MCAS? I have HyperPOTS and MCAS - with that there seems to be many of us with EDS also. Does she demonstrate signs of that too?Issie Quote Link to comment Share on other sites More sharing options...
jpjd59 Posted August 5, 2012 Author Report Share Posted August 5, 2012 Issie:No, she doesn't have EDS.Pam Quote Link to comment Share on other sites More sharing options...
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