Pots Hole

[LMG]

Hi All.

Sudden onset last September. Heart rate is better due to a very tiny amount of florinef and low dose SSRI. I can get up out of bed and drive self to doc sometimes. That's about it.

I have severe nausea, shakiness, fatigue and the worst is the migraines. I start to feel better and every week I get one and the whole POTS thing starts all over.

Endo says increase florinef and take propanolol. I am concerned about fatigue and lowering an already low resting heart rate (in the 50s).

Neuro says antiseizure drug like topomax or neurontin for migraine prevention. They both sound awful.

I just want to be able to get out and do a few things...and feel semi normal.

Anyone have any ideas?

Anyone getting back to any level of functioning after a year of this? I am over 50 and am worried that this is it.

Any ideas or encouragement please!!! Feeling pretty frustrated this week.

Also I salt load and take potassium and b12. Magnesium didn't appear to help migraines.

[jpjd59]

LMG:

Sorry to hear that you are not feeling well. My daughter (23 years old) also had a sudden onsest (after a virus) a year ago. She is still not able to function (basically homebound except for doctor's appointments). She also takes B12, magnesium and Vitamin D supplements. At her last doctor's appointment they told her it would probably be another year (or two) before she recovers completely. .

I know how frustrated you must feel. Don't give up!!!!

[issie]

Florinef has GIVEN many of us miagraines.

Issie

[bellgirl]

Yes, there is hope...don't give up...I'm finally somewhat balanced with meds after a year. I'm not on Florinef, though. Hang in there. I am 55