DoozlyGirl Posted April 29, 2012 Report Share Posted April 29, 2012 Lindajoy,My heart breaks when I read your posts. No one deserves to be treated with such contempt and lack of respect and compassion, especially from loved ones. I will be sending you positive thoughts to help you through this difficult time and find the strength to carry on with such heavy burdens. I looked on the site for a summary of what journey you have taken and the current diagnoses and symptoms you have. If you are interested, you can add a "signature" that shows up on each posting. Several people have recognized that my episodes and symptoms fit MCAS and they PMd me to share their suspicions. This prompted me to learn all I can on mast cell disorders, and I will be seeing a mast cell specialist in a few weeks. This step was critical in opening my eyes to a mast cell disorder to explain my symptoms. Maybe this strategy could help you as well. Best wishes, Lyn Quote Link to comment Share on other sites More sharing options...
CC101 Posted April 29, 2012 Report Share Posted April 29, 2012 Lindajoy,My heart breaks when I read your posts. No one deserves to be treated with such contempt and lack of respect and compassion, especially from loved ones. I will be sending you positive thoughts to help you through this difficult time and find the strength to carry on with such heavy burdens.I looked on the site for a summary of what journey you have taken and the current diagnoses and symptoms you have. If you are interested, you can add a "signature" that shows up on each posting. Several people have recognized that my episodes and symptoms fit MCAS and they PMd me to share their suspicions. This prompted me to learn all I can on mast cell disorders, and I will be seeing a mast cell specialist in a few weeks. This step was critical in opening my eyes to a mast cell disorder to explain my symptoms. Maybe this strategy could help you as well.Best wishes, LynYes Lyn I very much agree! Linda, in my first response to this post I asked if you could maybe type up a symptom list and what you deal with most. I am very interested on what is going on with you as I have not had the opportunity to learn more about you yet =) I Hope you are feeling better today! Quote Link to comment Share on other sites More sharing options...
LindaJoy Posted April 29, 2012 Author Report Share Posted April 29, 2012 Hi, everyone. Thank you for your suggestion. I don't know what you mean, though. I see all of the information that comes at the bottom of many people's posts here, but I really don't know how to do that with mine. Is it something I do in my account?Lyn, good luck with your mast cell issues. I've been tested quite a few times for mast cell disorder and found to not have it. I'm still skeptical, though, but I've seen most of the top US docs for this, so I have to think I truly don't have it.CC101, I'll try to see how to do the information stuff on my posts and get that to you all.Thanks.Linda Quote Link to comment Share on other sites More sharing options...
LindaJoy Posted April 29, 2012 Author Report Share Posted April 29, 2012 AGH! I did it! There's my information. All the years I've been here, and I never knew how you all got your information on your posts. That shows you how computer literate I am!But, here it is. If any of you have any ideas, please feel free to suggest them. Oh, should I have all that I've been tested for and found negative to in my signature? There seems to be a lot there already. Too much?Thanks, everyone, for caring so much. I care about all of you, too. Lindajoy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.