Monstrosity Posted March 29, 2012 Report Share Posted March 29, 2012 I'm not sure where to start but here goes. I'm a male 32 years old and appear to be in good health. 2 years ago I started to notice weird issues I was having. After seeing a ton of doctors and almost a year had gone by Dr. Jaeger from the Cleveland Clinic diagnosed me with Dysautonomia. I wasnt accepting of the diagnosis till January of this year. I went to UH for a second opinion and they said I have POTS. This has been a very challenging road. I struggle on a daily basis but I push through to remain as normal as possible. I almost feel as this is some kind of test thats been brought upon me. I've got a beautiful Fiance that pushes me and does her best to help. When people ask what my worst symptoms are I usually tell them if varies day to day but my top 3 worst are: Fatigue, Ear issues (especially the ringing and hissing), and last but not least the Tremors (especially when they are full body or in my head).I've been on several meds and none have worked out. Neurontin is ok for short periods but makes me aggressive. I tried Effexor last week and it caused my tremors to go into overload... Cymbalta did the same thing but it wasnt till after I was on it for a few months. Hopefully my Neuro will figure something out that I can tolerate. Thanks for reading! Quote Link to comment Share on other sites More sharing options...
Chaos Posted March 29, 2012 Report Share Posted March 29, 2012 Welcome! Sorry you're having to struggle with this. Glad you found the forum. Hopefully we can be a good support for you.Interesting that neurontin makes you aggressive. It seems to make me so tired, I can barely spell aggressive let alone demonstrate it. LOL Quote Link to comment Share on other sites More sharing options...
JenLR Posted March 29, 2012 Report Share Posted March 29, 2012 Welcome to the forum! Sorry that you are having to deal with this awful syndrome. I'm 32 as well, and have been struggling with this for about three years. Fatigue is one of my worst symptoms, too. I hate that it keeps me from doing so many of the things that I want to do.I hope that your doctor is able to find a good combination of meds to help with your symptoms. I have tried so many medicines that didn't work, but have also had luck with a few. Hopefully, the next drug your doctor recommends will be the one that starts to help you feel better. Good luck! Quote Link to comment Share on other sites More sharing options...
Monstrosity Posted March 29, 2012 Author Report Share Posted March 29, 2012 Thanks Chaos and Jen! Today I had a balance test done (had one done 2 years ago, but my Neuro wanted to rule out inner ear). In case anyone has to have one I'll just state I'm glad its over...After that I went to my Chiro and he made some adjustments. I then decided to hit the gym. I had stopped working out after almost passing out in late December while squating with some decent weight. I've been doing a little here and their around my house for the past 2 weeks. So I went to the gym and did 20 minutes on an exercise bike, very low intensity. I then did a very light weight high rep low intensity upper body workout. I used all machines and no free weights. Everything was 2 sets of 20 with 20lbs and no more than 30 seconds of rest. Lat pull downs, bench, shoulder press, tricep extension, and bicep curl. I was having all kinds of issues while their but I pushed through. I noticed that I was ok while working out it was resting or walking to my next objective that I had the issues. Hopefully I wont regret it tomorrow... Quote Link to comment Share on other sites More sharing options...
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