Katybug Posted March 23, 2012 Report Share Posted March 23, 2012 I saw a segment on Anderson Cooper today about a group of diseases called Eosiniphilic Disorders. Even with all the hunting I did when my GI flares were severe, I never came across this information. Attached is a website that explains these disorders. Hope this helps someone.http://apfed.org/drupal/drupal/symptoms_of_EGIDs Quote Link to comment Share on other sites More sharing options...
anna Posted March 24, 2012 Report Share Posted March 24, 2012 Hi thanks for the post, I think Eosinophilic disorders need to be looked into just like Mast cell disorders, as they do seem to play havoc with much of the body possibly on par with MCAD. Quote Link to comment Share on other sites More sharing options...
Katybug Posted March 24, 2012 Author Report Share Posted March 24, 2012 I had never heard of them before but I know there are a few people on this forum that have said they can only eat 3 or 4 foods. That is apparently consistent with these disorders. I would agree that people that wonder if they have MCAD would be well served to check these out too. Quote Link to comment Share on other sites More sharing options...
roxie Posted March 24, 2012 Report Share Posted March 24, 2012 I had a upper GI done a few years ago and they found esosinophilic esophagitis. They told me it was from acid reflux and they wanted me to take tons of ppi's. The ppi's made me feel awful and my reflux didn't get better. I've been tired of dealing with gastro's so I just dealt with it. A few months ago my dr did a gastric emptying that revealed pretty severe gastroparesis which I believe has caused the reflux.Right now, I don't know if EE is from a food allergy or the reflux caused by gastroparesis.It's definitely something to look more into. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted March 24, 2012 Report Share Posted March 24, 2012 Thanks Katie, this is interesting... Quote Link to comment Share on other sites More sharing options...
LindaJoy Posted March 25, 2012 Report Share Posted March 25, 2012 When I first got sick, I was tested for POTS and treated, but some of my symptoms didn't clear. It was found that I had Eosinophilic Esophagitis. I was treated with a swallowed corticosteroid pump spray, which worked for all of a week. Now, since I have to be on hydrocortisone daily for Addison's Disease, my EE is under control.I am one of those on here who can eat few foods. Actually, right now, I can eat no foods and am back on strictly an elemental formula. No one has been able to figure out why I react so badly to eating. I've been tested for the eosinophilic disorders and mast cell disease, to no avail. I'm now undergoing testing for myalgic encephalomyolitis. That can cause severe reactions to eating.Thanks for the information on EE offered. It's good stuff.Lindajoy Quote Link to comment Share on other sites More sharing options...
martiz Posted March 26, 2012 Report Share Posted March 26, 2012 When I first got sick, I was tested for POTS and treated, but some of my symptoms didn't clear. It was found that I had Eosinophilic Esophagitis. I was treated with a swallowed corticosteroid pump spray, which worked for all of a week. Now, since I have to be on hydrocortisone daily for Addison's Disease, my EE is under control.I am one of those on here who can eat few foods. Actually, right now, I can eat no foods and am back on strictly an elemental formula. No one has been able to figure out why I react so badly to eating. I've been tested for the eosinophilic disorders and mast cell disease, to no avail. I'm now undergoing testing for myalgic encephalomyolitis. That can cause severe reactions to eating.Thanks for the information on EE offered. It's good stuff.LindajoyHi LInda,What is myalgic encephalomyolitis? I googled it and cannot find it. Do you mean ME - Myalgic encephalomyelitis? as in Chronic Fatigue Sydnrome?Marti Quote Link to comment Share on other sites More sharing options...
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