micheller Posted February 29, 2012 Report Share Posted February 29, 2012 I seen my GI and neurologist today. They both think my nausea is related to pots. I was told to stay out of heat because my sweat test showed I don't sweat over 80% of my body. I am to start Midodrine 5 mg twice a day for a week to see how it helps. What are the side effects I should be watching for? I also got meds for migraines but my insurance has to approve it. I'm scheduled for an EMG, anyone have that? Quote Link to comment Share on other sites More sharing options...
Chaos Posted February 29, 2012 Report Share Posted February 29, 2012 When I started midodrine I think the side effects were mostly feeling like my skin had goose bumps and my scalp was itchy. There were a couple more that I can't remember but those only lasted a few days and then went away. The itchy scalp stayed for the 2 years I've been taking it.Good luck with it. It helped me a lot. Quote Link to comment Share on other sites More sharing options...
janiedelite Posted February 29, 2012 Report Share Posted February 29, 2012 It may be a good idea to check your BP occasionally. Over time, midodrine increased my BP too much. Quote Link to comment Share on other sites More sharing options...
Christy_D Posted February 29, 2012 Report Share Posted February 29, 2012 Midodrine made my son's skin crawl and scalp itch. Those side effects decreased after a couple of weeks, still there but more tolerable. Quote Link to comment Share on other sites More sharing options...
micheller Posted February 29, 2012 Author Report Share Posted February 29, 2012 She did say to monitor my bp. How high is too high? Quote Link to comment Share on other sites More sharing options...
janiedelite Posted February 29, 2012 Report Share Posted February 29, 2012 That would be a good question for your doctor. It is recommended not to lay down while the midodrine is active (3-4 hours after you take it), or your BP may be high while lying down. I think 140/90 is considered high blood pressure for average folks, but your doc might have different parameters for you. Quote Link to comment Share on other sites More sharing options...
Christy_D Posted February 29, 2012 Report Share Posted February 29, 2012 Yes, don't lay down after taking it. My son did once(and only once), he experienced chest pain. His doctor had told him to not take it if he wasn't going to be up for 3 to 4 hours. Therefore, he missed a lot of doses! Quote Link to comment Share on other sites More sharing options...
micheller Posted February 29, 2012 Author Report Share Posted February 29, 2012 Good to know! This is the first time I'm taking any medication for pots so not sure what to expect. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted February 29, 2012 Report Share Posted February 29, 2012 Hi Michelle - my 2 cents on this. While on midodrine I'd have goosebumps allover my body, I'd feel cold, so i'd need extra layers of clothing or an extra blankie, my scalp would itch, and I'd get some occasional minor stomach aches and leg cramps. Also my bp and heart rate spiked. In terms of how high is too high that's a question for your dr, as everyone is different. I can only tell you mine went up to 156/96, but was ok according to my dr.I hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted March 1, 2012 Report Share Posted March 1, 2012 I almost forgot - you are nit supposed to be lying down for at least 4 hours after taking it, and by all means you should not take the last dose of the day less than 4 hours before going to bed, as midodrine is known to increase your supine (lying down) blood pressure. I learned the hard way as I didn't read the leaflet that came with the prescription. Quote Link to comment Share on other sites More sharing options...
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