rubytuesday Posted January 10, 2012 Report Share Posted January 10, 2012 Someone had responded to a post and I cannot find it anywhere. Would anyone be familiar with support groups for those gamma globulin deficient people? Thank you so much. Quote Link to comment Share on other sites More sharing options...
arizona girl Posted January 10, 2012 Report Share Posted January 10, 2012 Yes go to daily strength cvid support group room. Cvid - Common variable immune deficiency is another name for hypogammaglobulinemia. There are several forms of primary immune defiencies that are treated with ivig. There are other autoimmune type disease of a variety that are also treated with IVIG. type of im def you have may determine what type of ivig product you get. There are about 10 on the market. I had to switch from the one I was on because it had glucose in it, and I'm pre-diabetic. Low IGA people must watch what product they take as well. You can also read up on the different im def's at primary immune.org.I've not joined the cvid group, but you can easily read their posts. They have a lot of good insight and links to other support pages. That info really helped me when I started on the ivig. Good Luck! Quote Link to comment Share on other sites More sharing options...
anna Posted January 10, 2012 Report Share Posted January 10, 2012 I found the infomation on thie following site useful, they list a number of forums within their site:- http://www.immunedisease.com/about-pi/ Quote Link to comment Share on other sites More sharing options...
rubytuesday Posted January 10, 2012 Author Report Share Posted January 10, 2012 Thank you, arizona girl and anna. I bookmarked the websites. :-) Quote Link to comment Share on other sites More sharing options...
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