A Little Further On :)

[s-pot]

So my week in hosp was kinda worthwhile afterall!!

Increased Midodrine has made me feel alot better althou the headaches are constant and bad now too! Anyone found a way of managing these headaches without having to keep popping painkillers? I hate the thought of my kidneys trying to process all these meds as it is!!

Discovered my blood sugars are running quite low i.e 2.6 less than an hour after biscuits and tea...varied between 2.6-3.9 in 24 hrs.

Fasting glucose level was abnormal. >7mMol

And MRI of pituitry showed 5mm microadenoma (tumor like growth, not dangerous but could be interfering with hormone/chemical levels).

Awaiting antibody tests to come back...dont know what they are exactly but so far my hormone levels have been ok.

Im wondering am i producing too much insulin due to this adenoma, also could the Implanon contaceptive bar i have in my arm be interfering with giving an accurate picture of actual hormone levels...im considering getting it out???

however have to wait 3months to go back to clinic to find out more :/ seems like ages away...its frustrating!!

[kclynn]

For headaches my son was told by a Mayo neurologist and a headache specialist Magnesium Citrate, Magnesium Malate, 400 mg was suggested to us but you can experiment (Citrate might be better to start) B2 Riboflavin, 400 mg also suggest to us (some would say increase all b vitamins so they don't become unbalanced). He stopped taking these for awhile and had no trouble but then had huge flare of screaming headaches. He has resumed the Magnesium and he has had fewer and much milder headaches since.

[Katybug]

Great news that you finally have some answers! Congrats! That's better than where things were earlier this week.