derekliz Posted October 7, 2011 Report Share Posted October 7, 2011 At the time the testing was done, I was on 12.5 mg on Metoprolol for about 2 weeks.Of course, when I am at home and take my pulse upon rising, it is higher--110-130 (using 3 different machines to check my pulse). I am now on 25 mg Metoprolol taken at bedtime, 0.5 Klonopin and just started 1/4 of a 50 mg Zoloft this morning I know there are so many here that have so much experience and knowlede and would love to hear from anyone Test Results: Echo here did confirm Mitral Valve Prolapse with slightly thickened mitral valve leaflets and a trace of mitral and tricuspid regurgitation. I/IV aortic regurgitation noted. Tilt table test was suggestive of POTS with a small blood pressure drop.DIAGNOSES: Labile blood pressure. Palpitations and tachycardia. POTS. Non-restorative sleep and fatigue, no current sleep disorder diagnosed. Generalized anxiety disorder. POTS/MVP disorder. Dysautonomia.Physical exam: seated BP 120/74 Pulse 72 standing BP 110/68 Pulse 80Tilt Table TestBaseline EKG BP 115/75 HR 71-72Tiltminute 1 BP 110/75 HR 81Minute 2 EKG HR 80minute 3 BP 107/77 HR 82Minute 4 EKG HR 86Minute 5 BP 108/73 HR 87minute 6 EKG HR 88Minute 7 BP 110/74 HR 86Minute 8 EKG HR 92Minute 9 BP 108/72 HR 86Minute 10 BP 108/72 HR 85-84POST TILTMinute 1 HR 72Minute 2 EKG BP 115/72 HR 77-66Interpretation: suggestive of POTS with small blood pressure drop notedTWO DIMENSIONAL ECHOCARDIOGRAMLeft ventricle 3.9 (3.7-5.6)Interventricular Septum 0.7 (0.6-1.1)Left ventricular Post Wall 0.8 (0.6-1.1)Right Ventricle 2.8 (<3.0)Left Atrium 3.2 (1.0-4.0)Aortic Root 2.7 (2.0-3.7)Aortic Cusp Sep 1.7 (1.5-2.1)Cardiac Doppler ReportAortic Valve Grade 1/4 AICONCLUSIONS:There is prolapse of the mitral valve leaflets in systoleInsignificant mitral regurgitation presentNormal aortic valveNormal left atrial sizeNormal left ventricle size, wall motion and function. No effusionGrade 1/4 AI Quote Link to comment Share on other sites More sharing options...
lieze Posted October 7, 2011 Report Share Posted October 7, 2011 That's great-how are you feeling about your results? Quote Link to comment Share on other sites More sharing options...
derekliz Posted October 7, 2011 Author Report Share Posted October 7, 2011 I am not feeling great about my results....strangely enough!!! I am just really wondering if I truly have POTS since I am not seeing the 30 point jump on "PAPER". I have the 30+ point jump at home everyday....just not making sense to me.I had hormone tests done on Wed....pending results, Histamine test on Wed....pending results. Sleep study in a few weeks. And going back to Birmingham on Nov 4th. I am just so confused and overwhelmed with all of this and then not having anyone in the ATL area that knows anything about this is very frustrating. I do have to say that the nurses in Birmingham are excellent, return my calls quickly and I never get the impression that I am bothering them. Quote Link to comment Share on other sites More sharing options...
anna Posted October 7, 2011 Report Share Posted October 7, 2011 Hi I just posted similar post re: my son's TTT so confused I understand how you feel!!! Quote Link to comment Share on other sites More sharing options...
derekliz Posted October 7, 2011 Author Report Share Posted October 7, 2011 Oh Anna, it's rough isn't it......Bad enough for me but I can only imagine how you feel with your son having it. I am so sorry! Quote Link to comment Share on other sites More sharing options...
anna Posted October 7, 2011 Report Share Posted October 7, 2011 I think anyone that has these POTS type problems has it rough, especially as diagnosis is so difficult at times!!! Is your resting/baseline HR normally lower than the low 70's by any chance?! My sons tends to be in the low 50's!! Quote Link to comment Share on other sites More sharing options...
derekliz Posted October 7, 2011 Author Report Share Posted October 7, 2011 it is only that low when I first get up in the morning. It is typically in the low 60's but that only started when I began taking the betablocker. I am curious to see the fluctuations when I have the sleep study done. Well, actually I take that back, when I had the holter monitor for 24 hours, there were lots of fluctuations and there were some readings below 70 and I was not on medication at the time Quote Link to comment Share on other sites More sharing options...
anna Posted October 7, 2011 Report Share Posted October 7, 2011 It just seems to get more and more confusing doe is not!!! I hope you find something show up in the sleep study!!!! Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 7, 2011 Report Share Posted October 7, 2011 Hi,Your numbers don't reflext POTS at that time. You might redo a TTT on a day when you are more symptomatic. Quote Link to comment Share on other sites More sharing options...
derekliz Posted October 7, 2011 Author Report Share Posted October 7, 2011 I was symptomatic that day which is the strange thing....ugh so frustrating!!!No one in Atlanta will do the ttt on me. Not like i can just hop in the car and drive 3 hours each way and demand a ttt. It just pop some pills and see if they work...sorry...needed to vent!! Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 7, 2011 Report Share Posted October 7, 2011 Hi,Choose a day that you are menstruated. Quote Link to comment Share on other sites More sharing options...
derekliz Posted October 7, 2011 Author Report Share Posted October 7, 2011 Fortunately, my symptoms are not worsened by menstruation Quote Link to comment Share on other sites More sharing options...
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