Annaliese Posted September 5, 2011 Report Share Posted September 5, 2011 For those of you with hyper POTS, have you discovered an ideal spacing for taking low dose propanalol? I take 20mg at a time, any more than that and I start to feel like I'm breathless. I take 20mg at 8am then 20mg at 12pm and 10mg at 4 pm. I don't take it before bed as my blood pressure gets too low. I am thinking perhaps I need to decrease the spacing as I am still suffering from a lot of anxiety. How often does everyone else take it? Btw my standing noradrenalin level Is about 1000. In my next appointment I am going to ask or a trial of clonidine. If I trial clonidine do I need to drop my beta blocker dosage? I can't come to the states and am relying on a dr who knows nothing about hyper POTS. My last Q is, is it standard to treat hyper POTS with beta blockers plus clonidine or have I got this wrong? Thanks in advance fir any help. Quote Link to comment Share on other sites More sharing options...
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