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How long have you been ill?  

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im actually gonna say im hitting the 10-11 year mark.... each year has worsened significantly for me up to the point of almost completely bedridden these past couple of years.... we are trying so hard to get a grip of this, but all efforts seem nose dive..... yea, im at the point i just can't cope anymore..... not even therapy is helping..... and after so many years of this, im so tired... so so so tired of trying, so tired of going to bed hoping i wake up 'normal' and it never happens...... im pretty fed up with it all :(

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